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How to find an Autism trained doctor ?

autismtwo

How do you find a real GP doctor ? who understands your condition and can treat you with sensitive because you are hypersensitive to pain in the body ? With the emotional overload and social relationship problems with a doctor(trust, not knowing them as people), can you find a DOCTOR WHO IS A REAL DOCTOR ? basically empathic, listening, compassionate and most importantly accessible without the barriers of phoning for an appointment, waiting for an appointment, speaking to the docs receptionists, waiting in crowded waiting rooms, speaking to the doctor who you do not know, explaining your symptoms without anxiety.

CAN YOU GET SUCH A THING AS A SPECIAL NEEDS DOCTOR GP ?   

  • Hi Autismtwo - I think you put across your difficulties very lucidly + that's what you need to do when you see your GP + if referred you need to do the same again.  I think your anxiety is very detrimental to your well-being + could ultimately cause serious problems for you if you became ill or were in need of some other sort of assistance.  Many NTs have anxiety but perhaps for most not at the same level/length of time that autistic people do.  So I think they can understand, but in an nt-way.  Good luck with everything - same applies to Hope.

  • I am the same. Home is the safest place, although even at home I have anxiety. I fear being in a situation where I have no control.

  • Thanks Crystal, I will speak to my GP, because this issue really has me feeling isolated and vulnerable. Even just to talk about it,, would be a step forward, instead of me feeling locked into a stress cycle of conflict. They need to understand, phoning NHS 24, going to see a doctor when vulnerable, calling an ambulance, even having ambulance crew visit me or touching me, the flashing lights and noise of an ambulance, going into a hospital and ward,, IS TOTAL TERRIFYING, so I am panic and projecting the outcome before it even happens to try and protect myself, so I end up in I need help but I am scared of help.. DOES THE NT'S OR NAS EVEN UNDERSTAND WHAT I AM TALKING ABOUT HERE ?

    I have similiar issue with breaking down on a motorway, or needing the toilet in a strange place,, IT IS THE PEOPLE CONTACT I AM AFRAID off and there control over me, especially if I am feeling vulnerable at time or I can not get away from them somehow.

    Thank you again Crystal Smile

     

  • Hi autismtwo.  An mdt, as far as I know, is made up of psychiatrists/psychologists, maybe an LD nurse, maybe an OT. They may share premises with social services staff in the community.   Patients can get referred via their GP + I think maybe a social worker.  They don't deal with purely physical problems, as far as I'm aware.  Self-injurous behaviour would be something they would try to help with.  Other areas could be where a condition is impacting strongly on a person to their detriment.  They may well have a criteria for who they'll see, just as primary care decides when to refer a patient to secondary care for treatment.  I have a bit of knowledge of mdts but am not an expert on everything they treat etc.  Your GP could write a letter to the mdt if s/he wished, then I think the mdt sends out a member of their team (what job title I don't know) to assess you.  Then I think you get a letter and/or phone call with an appointment time + date.  Obviously after that it's individual to each patient/client.

  • Crystal, thankyou for your reply, that is were I AM falling through the gap of treatment.. what is "They tend to pass patients over to the nhs multi disciplinary team which deal with LD + autism." could you give me more information please on this route, who is the multi-disciplinary team ? My GP just treats me as an anxiety case which IS CAUSING ME ANXIETY. What is a  mdt ?

  • Hi - not likely in a GP practice in my opinion, however well intentioned the doctors may be, which mine are.   I don't think many GPs know much about autism.  They tend to pass patients over to the nhs multi disciplinary team which deal with LD + autism.  At least they do where I live.  I think most GPs are more interested in physical illnesses + whilst they realise that emotions can cause certain symptoms such as sickness, aches + pains, depression etc etc these are things which aren't as clear cut as, say, gallstones or a broken leg, if you see what I mean.  Therefore patients get referred, whether it be to a hospital, a mdt etc where GPs think there's more specialised help available.