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9 year old son newly diagnosed on ASD spectrum

Maggie

Hello everyone

My son has recently been diagnosed as being on the ASD spectrum. We always knew there was something not quite right, but he was assessed aged 3 (due to the help of a vigilent nursery worker) as having a speech and language disorder with autistic traits. It has taken that long to have the 3Di assessment and confirmation.

I am very lucky that as soon as he started mainstream infant school he had a statement and was accepted into a speech and language centre attached to a mainstream junior school and fully integrated in the afternoons.

My main concern is telling him about his condition, mainly due to the speech and language disorder, whether he will understand. It almost feels that we are teaching him the language of English!!! Just the most basic of words he doesn't understand, but due to his echolalia and good memory he just learns words and phrases and sounds mega-intelligent!

He is just a lovely, calm boy, who eats and sleeps well, so I at least am thankful for that!

I wonder if anyone has the same predicament as me/my son and any advice or help would be greatly received.

Maggie :0)

 

  • hi maggie ure situation sounds very simular to mine my son who is also 9 was diagnosed at the beginning of april and we also had him assessed in nursery n have been waitin for the follow up assesment and have finally had it and got the dignoises our son is also a lovely boy n sleeps well like ures his main probs are his social interaction n changes my son is also in mainstream junior school which are really good n understanding with him although he copes quiete well at school really i felt a bit like right hes got this now get on it after we were told so like u im lookin for any advice n support too we have not told our son he has autism as yet to tell ya the truth im not sure when, if or how to go about it, hope we can help support each other with having a son of same age it cud be helpful to each other, hope to speak soon x

  • Hi Maggie

    I know what you mean. It does seem difficult to know how much of what you're saying is understood. My personal view on it is to mention it every now and again with my son. My thinking is that I don't want it to come as shock news later on.
    Here's some NAS information about the subject:
    http://www.autism.org.uk/en-gb/about-autism/all-about-diagnosis/diagnosis-the-process-for-children/diagnosis-telling-a-child-about-their-diagnosis.aspx
    There are some interesting looking books there too which could be useful.
    Hopefully some of our other users will also share their experiences.
    Goodluck.

    Sandra