Hormone testing and autism in women

Hello, 

I would be really grateful if anyone could advise me on issues relating to hormone disorders and autism in women. Are there useful hormone tests that autistic women might want to request? 

I am a 34 y/o female who is currently waiting for their autism assessment (I was referred to the NHS services a year ago). I have always had acute anxiety/depression and emotional / mood-based disorders, so understanding myself as autistic has been really helpful and enlightening. In addition, I have had hypothyroidism since I was 13. I experience very severe mood swings, which is controlled (to some extent) by SSRIs. I also have PMDD - I often know my period is approaching because I will start to get suicidal ideation. Over the years, I have just got used to thinking of myself as the most dramatically hormonal person in the world. 

I've been having long term trauma therapy with an autistic therapist, which has been helpful but I still frequently feel very out of control of - and undermined by - my body.  I have been suffering from a lot of problems recently, which are both mental health problems, neurological problems. At the same time my thyroid function tests have been fluctuating - from being under medicated on one test, to being overmedicated on the next (without altering my dosage in-between). I have been experiencing a range symptoms that I think could be hormonal - very low self esteem, disassociation, feeling "flat" or disconnected, severe paranoia, thinking everyone hates me etc, short term memory loss, total loss of sex drive, loss of pleasure during orgasm. 

I feel really unsupported by my GP practice - an admin error meant that I was overmedicated for months, leading to my daily panic attacks and huge weight loss, without realising it was due to the Levothyroxine i was taking rather than just my own brain. People frequently suggest I get other hormone tests -- so I just wondered if anyone had any experience of this and other useful hormone tests that could be done? Or whether this is just one of those mythical things people say...? I still haven't received any professional advice regarding the possible overlaps of autism and hormonal disorders or hypothyroidism and autism. 

Any advice would be really welcome! I am still trying to learn more about autism. Thanks so much. 

Parents
  • I've had to find ways of regulating my own hormones and my sons. 

    I'm not a doctor, but I can tell you what has worked for our family. My son used to have difficulty with depression, I've always had undiagnosed medical issues that I seem to have gotten a little control over. When I was a little older a mentor had mentioned taking something to help balance out her menopause symptoms. I sort of catalogued that as 'future reference'. 

    I discovered a company which had been around since the 70s called Crystal Star. And I've recommended them to several friends. In my experience, it never hurts to micro dose a thing after a little investigation - I usually just find out what might interfere. https://uk.iherb.com/pr/crystal-star-women-s-best-friend-90-vegetarian-capsules/57453 This company seems to have other things which are useful. I've taken these for years on and off.

    Another thing I've looked into isn't just making sure I'm getting nutrition but also that the endocrine system and penal gland are well supported. These regulate everything it seems! I started looking into this for my son as anti-depressants were causing more harm than help. He went off of them and we found Ashwaganda gave him the boost he needed. It's a vitamin D booster in the system, but sometimes herbs or various mushrooms can be more helpful than the chemically manufactured compound. He also takes 1/3 dose of a daily multi. He doesn't experience the negative side effects of the SSRIs and he's in such a better place. A few external changes helped as well, but depression is found in his fathers family, along with an egg allergy. Oddly. It could be that he's wired for a different climate (1/4 Greek) or there's something biologically in the DNA that is prone to this.

    It's always hard, I think, to start attempting to work out what is biological and what is situational. A difficult amount of stress on a daily basis - whether it's from a demanding and difficult parent or someone else who can impact my well-being financially or emotionally, someone who has a responsibility toward or with me (not children), needs to be apprehended. Stress from other daily factors can affect our well being and then of course there's issues from inflammation (refined sugars or alcohol). But assuming there's no one causing unneeded stress and you're mindful of a mostly responsible diet, then I might look at biology. 

    If you're taking medication, though, PLEASE make sure to run any added herbs or vitamins by your GP before taking them. For instance grapefruit combined with various anti-anxiety drugs is oddly deadly! But most are harmless and might help give the smallest boost needed, I always start with 1/2 or less of the recommended amount. 

Reply
  • I've had to find ways of regulating my own hormones and my sons. 

    I'm not a doctor, but I can tell you what has worked for our family. My son used to have difficulty with depression, I've always had undiagnosed medical issues that I seem to have gotten a little control over. When I was a little older a mentor had mentioned taking something to help balance out her menopause symptoms. I sort of catalogued that as 'future reference'. 

    I discovered a company which had been around since the 70s called Crystal Star. And I've recommended them to several friends. In my experience, it never hurts to micro dose a thing after a little investigation - I usually just find out what might interfere. https://uk.iherb.com/pr/crystal-star-women-s-best-friend-90-vegetarian-capsules/57453 This company seems to have other things which are useful. I've taken these for years on and off.

    Another thing I've looked into isn't just making sure I'm getting nutrition but also that the endocrine system and penal gland are well supported. These regulate everything it seems! I started looking into this for my son as anti-depressants were causing more harm than help. He went off of them and we found Ashwaganda gave him the boost he needed. It's a vitamin D booster in the system, but sometimes herbs or various mushrooms can be more helpful than the chemically manufactured compound. He also takes 1/3 dose of a daily multi. He doesn't experience the negative side effects of the SSRIs and he's in such a better place. A few external changes helped as well, but depression is found in his fathers family, along with an egg allergy. Oddly. It could be that he's wired for a different climate (1/4 Greek) or there's something biologically in the DNA that is prone to this.

    It's always hard, I think, to start attempting to work out what is biological and what is situational. A difficult amount of stress on a daily basis - whether it's from a demanding and difficult parent or someone else who can impact my well-being financially or emotionally, someone who has a responsibility toward or with me (not children), needs to be apprehended. Stress from other daily factors can affect our well being and then of course there's issues from inflammation (refined sugars or alcohol). But assuming there's no one causing unneeded stress and you're mindful of a mostly responsible diet, then I might look at biology. 

    If you're taking medication, though, PLEASE make sure to run any added herbs or vitamins by your GP before taking them. For instance grapefruit combined with various anti-anxiety drugs is oddly deadly! But most are harmless and might help give the smallest boost needed, I always start with 1/2 or less of the recommended amount. 

Children
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