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Immunity-why is this happening to my son?

we r the auties

Does anybody know - is there some link between autism and low immunity???

My 5 year old son had Discitis [a rare complication from tonsilitis which is an abcess in the disc spaces in the spine] when he was 20 mnths old - before we knew he had ASC.

I've just had one of the most frightening experiences of my life as he has had Meningococcyl septicaemia and been a very poorly bunny.Cry

Thankfully, it was caught in time and he is recovering well. But it seems very odd to me that he has now had 2 uncommon/rare bacterial infections, though the paediatrician has dismissed it as an immune issue and said it is bad luck.

Can anyone shed any light, point me in any useful directions for research, please? I've been to the healthfood shop and put him on a small fortune's worth of supplements! He is of course, quite orally fixated and so a lot of things go in his mouth. I have it in my mind that this is not the whole answer though....???? I have a funny feeling there is more to it....

Rosemary xx traumatised and forever to be paranoid now at the slightest sniffle Frown

 

 

Parents

  • I agree with Crystal12, a trip to the GP could be a good start. Whilst the specialist immunological tests would be outside the scope of general practice, they can make the referral. This is assuming your general paediatrician hasn't already sought the advice from a paediatric infectious disease / immunologist and run further tests to establish that is was just 'bad luck' and nothing else.

    A way of establishing this, and in my opinion the best way forward, it is to write a simple letter to your GP and paediatrican saying that although you've been told that your little boy has been unlucky to have 2 very rare and serious infections in the last 3 years you are still concerned that there may be some connection. Ask them to clarify why they are confident that this was due to chance and there is not an immunological explanation.

    All said very nicely but you will get a flurry of activity as a response I can almost guarantee it. This is a perfectly reasonable letter to write, you are a mother seeking further clarification/reassurance. Perfectly understandable but it will make them stop and consider if they have looked at everything. You are right to worry about this, 2 serious rare infections should raise people's eyebrows. The chance of a rare connection between the two is rare.... but probably about as rare as getting 2 nasty infections with no connection! Why is the paediatrician so sure that it is the latter explanation!

    You will either get further tests done or some decent reassurance to stop you worrying. Either way a win win!

Reply

  • I agree with Crystal12, a trip to the GP could be a good start. Whilst the specialist immunological tests would be outside the scope of general practice, they can make the referral. This is assuming your general paediatrician hasn't already sought the advice from a paediatric infectious disease / immunologist and run further tests to establish that is was just 'bad luck' and nothing else.

    A way of establishing this, and in my opinion the best way forward, it is to write a simple letter to your GP and paediatrican saying that although you've been told that your little boy has been unlucky to have 2 very rare and serious infections in the last 3 years you are still concerned that there may be some connection. Ask them to clarify why they are confident that this was due to chance and there is not an immunological explanation.

    All said very nicely but you will get a flurry of activity as a response I can almost guarantee it. This is a perfectly reasonable letter to write, you are a mother seeking further clarification/reassurance. Perfectly understandable but it will make them stop and consider if they have looked at everything. You are right to worry about this, 2 serious rare infections should raise people's eyebrows. The chance of a rare connection between the two is rare.... but probably about as rare as getting 2 nasty infections with no connection! Why is the paediatrician so sure that it is the latter explanation!

    You will either get further tests done or some decent reassurance to stop you worrying. Either way a win win!

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