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Looking to go private for a diagnosis on aspergers

Chazzer

Hi I'm hoping anyone that's reading this could help me,my 11 year old son was referred by his school in may 2011 as we think he has aspergers,I took my son to my GP when he was 7 as I knew there was something not quite right only to be told I was a stressed mum of 5 and there was nothing wrong if only they had listened to me,as it is we are now on the nhs waiting list for a autistic diagnostic interview which I have been told will last a couple of hours the problem is we have been on the list since august 2011 and i have been told he is not going to be seen for a least another 9 months as nhs is so short staffed they haven't even seen anyone on that list for a couple of months,I was told by the nhs I could go private if I wanted but they are refusing to give me anin information on where to go,I feel I should not have to go down this route but if it will help my son I'm prepared to do anything,if anyone has any information on where I could go for this I would be very grateful,I live in Peterborough but would travel else where if needed,thanks Charlie x

Parents

  • Hi Guys

    I know this is a REALLY REALLY loooooong time after the original post. I just wondered what your outcome was with your son . I am in a smiliar postion although i have been referred and had an initial consultation i know my son will not be given a diagnosis through this paediatrician. She actually said children with aspergers can live perfectly normal lives and grow up slightly quirky and eccentric rather than as a problem. She said he displays signs of being ritualistic and anti-social but was more obsessed about the fact he gives eye contact. He does this because he has learnt to, he isnt comfortable doing so and will not give eye contact to children because he knows he does not 'have to' .

    so anyhow, rather than pushing and fighting and waiting forever and a day i wanted to pursue the private diagnosis route but wanted to know who i could go to and would it be accepted by school for the purposes of reasonable adjustments and funding ? i am worried aboutgoing through it all to be told it isnt acceptable and he would need the NHS diagnosis.

    He has been assessed by an educational psyc privately , the outcome of which was that he ' tested positive ' for ASD, in her view of a High functioning Varient - most likely aspergers.

    Any advice would be greatly appreciated. I am so tired already and very upset and distressed, he is a constant battle and whilst i feel so lucky to have such a wonderful intelligent amazingly different boy, i feel both I and the school will need some help.

Reply

  • Hi Guys

    I know this is a REALLY REALLY loooooong time after the original post. I just wondered what your outcome was with your son . I am in a smiliar postion although i have been referred and had an initial consultation i know my son will not be given a diagnosis through this paediatrician. She actually said children with aspergers can live perfectly normal lives and grow up slightly quirky and eccentric rather than as a problem. She said he displays signs of being ritualistic and anti-social but was more obsessed about the fact he gives eye contact. He does this because he has learnt to, he isnt comfortable doing so and will not give eye contact to children because he knows he does not 'have to' .

    so anyhow, rather than pushing and fighting and waiting forever and a day i wanted to pursue the private diagnosis route but wanted to know who i could go to and would it be accepted by school for the purposes of reasonable adjustments and funding ? i am worried aboutgoing through it all to be told it isnt acceptable and he would need the NHS diagnosis.

    He has been assessed by an educational psyc privately , the outcome of which was that he ' tested positive ' for ASD, in her view of a High functioning Varient - most likely aspergers.

    Any advice would be greatly appreciated. I am so tired already and very upset and distressed, he is a constant battle and whilst i feel so lucky to have such a wonderful intelligent amazingly different boy, i feel both I and the school will need some help.

Children
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