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Looking to go private for a diagnosis on aspergers

Chazzer

Hi I'm hoping anyone that's reading this could help me,my 11 year old son was referred by his school in may 2011 as we think he has aspergers,I took my son to my GP when he was 7 as I knew there was something not quite right only to be told I was a stressed mum of 5 and there was nothing wrong if only they had listened to me,as it is we are now on the nhs waiting list for a autistic diagnostic interview which I have been told will last a couple of hours the problem is we have been on the list since august 2011 and i have been told he is not going to be seen for a least another 9 months as nhs is so short staffed they haven't even seen anyone on that list for a couple of months,I was told by the nhs I could go private if I wanted but they are refusing to give me anin information on where to go,I feel I should not have to go down this route but if it will help my son I'm prepared to do anything,if anyone has any information on where I could go for this I would be very grateful,I live in Peterborough but would travel else where if needed,thanks Charlie x

Parents

  • Well, as I said in my previous message, there is plenty on the NAS website about the failings of CAMHS - and this is UK-wide:

    www.autism.org.uk/.../search results.aspx

    Then there is this:www.independent.co.uk/.../nhs-failing-to-support-children-with-autism-1994411.html

    ...and this: www.thelearningdisabilitieself.net/.../

    I don't need to say more than the word "Winterbourne" to illustrate other NHS failings.

    My area is supposedly at the cutting edge of a lot of things, it's a large, progressive city.  And still there are such failings, and I don't believe they are uncommon either.  The very fact that my GP was unaware of the law relating to reasonable adjustments likely means that most GPs are the same.

    You only have to look at patient reviews to see that A&E does not cater for people on the spectrum, frontline NHS workers are unaware of autistic traits and what adjustments they need to make, and the NHS rarely employs specialist diagnostic clinicians.  There is a culture of hiding things under the carpet too as we all know and they will not admit when they have made a mistake.

    PALS is a joke, it's not even independent - and neither is the PSHO, and it is unregulated.

    I could go on.  I'm sure there are one or two areas which do well, but they are probably a rarity.  I'm sure I read somewhere recently that many health authorities have also still not initiated the autism care pathway and pathway to diagnosis that they are supposed to have in law, according the the Autism Act and the Autism Strategy.  None of it is worth the paper it's printed on, most people you speak to in the NHS have no idea of the law and pay lip service to things that you, as the patient, need to inform them of they are supposed to be doing.  This is the NHS culture, and it's endemic across the UK.

Reply

  • Well, as I said in my previous message, there is plenty on the NAS website about the failings of CAMHS - and this is UK-wide:

    www.autism.org.uk/.../search results.aspx

    Then there is this:www.independent.co.uk/.../nhs-failing-to-support-children-with-autism-1994411.html

    ...and this: www.thelearningdisabilitieself.net/.../

    I don't need to say more than the word "Winterbourne" to illustrate other NHS failings.

    My area is supposedly at the cutting edge of a lot of things, it's a large, progressive city.  And still there are such failings, and I don't believe they are uncommon either.  The very fact that my GP was unaware of the law relating to reasonable adjustments likely means that most GPs are the same.

    You only have to look at patient reviews to see that A&E does not cater for people on the spectrum, frontline NHS workers are unaware of autistic traits and what adjustments they need to make, and the NHS rarely employs specialist diagnostic clinicians.  There is a culture of hiding things under the carpet too as we all know and they will not admit when they have made a mistake.

    PALS is a joke, it's not even independent - and neither is the PSHO, and it is unregulated.

    I could go on.  I'm sure there are one or two areas which do well, but they are probably a rarity.  I'm sure I read somewhere recently that many health authorities have also still not initiated the autism care pathway and pathway to diagnosis that they are supposed to have in law, according the the Autism Act and the Autism Strategy.  None of it is worth the paper it's printed on, most people you speak to in the NHS have no idea of the law and pay lip service to things that you, as the patient, need to inform them of they are supposed to be doing.  This is the NHS culture, and it's endemic across the UK.

Children
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