Looking to go private for a diagnosis on aspergers

Hi I'm hoping anyone that's reading this could help me,my 11 year old son was referred by his school in may 2011 as we think he has aspergers,I took my son to my GP when he was 7 as I knew there was something not quite right only to be told I was a stressed mum of 5 and there was nothing wrong if only they had listened to me,as it is we are now on the nhs waiting list for a autistic diagnostic interview which I have been told will last a couple of hours the problem is we have been on the list since august 2011 and i have been told he is not going to be seen for a least another 9 months as nhs is so short staffed they haven't even seen anyone on that list for a couple of months,I was told by the nhs I could go private if I wanted but they are refusing to give me anin information on where to go,I feel I should not have to go down this route but if it will help my son I'm prepared to do anything,if anyone has any information on where I could go for this I would be very grateful,I live in Peterborough but would travel else where if needed,thanks Charlie x

Parents
  • Oh well I can disagree with you there again then.  Our local CAMHS have been useless as well (and the NAS has documentation on it's website stating that a high % of parents of autistic children feel CAMHS is failing them).  My eldest daughter categorically has AS (my other child is diagnosed with autism) and they have failed to diagnose her.  They admitted she has autistic behaviours but have relied heavily on the questionnaire (against the advice of Dr Judith Gould on this website), are clearly unaware of presentation in females and conducted a sub-standard assessment and made an "inconclusive" decision.

    In the meantime we are left with no support for my daughter who desperately needs it and I have given them so much information on her including specific examples showing how she meets the diagnostic criteria.  They ignored all of it at her assessment and sent us an assessment report full of factual errors which they refuse to amend.  They have misreported what I said.  They denied the genetic risk she has being applicable even though NHS NICE Guidelines state a sbiling is an increased risk, they refuted it.

    As for CCGs this all happened before the new CCGs came into existence.  regarding myself, I complained to PALS who are a chocolate teapot, they were intimidated by the clinicians and promised something they then backtracked on.  The reason they gave was the same reason I was complaining about!  Talk about paradox.  I went to the Commissioning Panel for funding for out of area reassessment and they refused it and also refused to answer my questions about what they based their decision on so that I could make a full case to the PHSO.

    I have already been in direct contact with the commissioning manager about my daughter, means well but is again being influenced by CAMHS because they are "the experts" yet they are the ones who have failed us.  They all stick together.

    To top it all, my GP is refusing to follow the law (in at least 3 acts: Disability Act 2005, Health & Social Care Act 2008 & Equality Act 2010 [I think]) in allowing me reasonable adjustments which people with autism and/or mental health are allowed in law.

    He also does not read vital correspondence I send him proving my diagnosis 9and other things) and makes false claims because he hasn't read them and is just making himself look stupid in the process.

    And then there is my youngest child diagnosed with autism.  If I told you the palava the NHS have created over things they should have done and what I had to fight for you would understand.  And my local parent partnership group tells me that all the parents of SEN children they speak to tell them the same, they have to go through hell fighting for what the NHS and other services are supposed to give them in law.

    The NHS does not follow it's own Charter and rules.  Like I said, useless.

Reply
  • Oh well I can disagree with you there again then.  Our local CAMHS have been useless as well (and the NAS has documentation on it's website stating that a high % of parents of autistic children feel CAMHS is failing them).  My eldest daughter categorically has AS (my other child is diagnosed with autism) and they have failed to diagnose her.  They admitted she has autistic behaviours but have relied heavily on the questionnaire (against the advice of Dr Judith Gould on this website), are clearly unaware of presentation in females and conducted a sub-standard assessment and made an "inconclusive" decision.

    In the meantime we are left with no support for my daughter who desperately needs it and I have given them so much information on her including specific examples showing how she meets the diagnostic criteria.  They ignored all of it at her assessment and sent us an assessment report full of factual errors which they refuse to amend.  They have misreported what I said.  They denied the genetic risk she has being applicable even though NHS NICE Guidelines state a sbiling is an increased risk, they refuted it.

    As for CCGs this all happened before the new CCGs came into existence.  regarding myself, I complained to PALS who are a chocolate teapot, they were intimidated by the clinicians and promised something they then backtracked on.  The reason they gave was the same reason I was complaining about!  Talk about paradox.  I went to the Commissioning Panel for funding for out of area reassessment and they refused it and also refused to answer my questions about what they based their decision on so that I could make a full case to the PHSO.

    I have already been in direct contact with the commissioning manager about my daughter, means well but is again being influenced by CAMHS because they are "the experts" yet they are the ones who have failed us.  They all stick together.

    To top it all, my GP is refusing to follow the law (in at least 3 acts: Disability Act 2005, Health & Social Care Act 2008 & Equality Act 2010 [I think]) in allowing me reasonable adjustments which people with autism and/or mental health are allowed in law.

    He also does not read vital correspondence I send him proving my diagnosis 9and other things) and makes false claims because he hasn't read them and is just making himself look stupid in the process.

    And then there is my youngest child diagnosed with autism.  If I told you the palava the NHS have created over things they should have done and what I had to fight for you would understand.  And my local parent partnership group tells me that all the parents of SEN children they speak to tell them the same, they have to go through hell fighting for what the NHS and other services are supposed to give them in law.

    The NHS does not follow it's own Charter and rules.  Like I said, useless.

Children
No Data