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Looking to go private for a diagnosis on aspergers

Chazzer

Hi I'm hoping anyone that's reading this could help me,my 11 year old son was referred by his school in may 2011 as we think he has aspergers,I took my son to my GP when he was 7 as I knew there was something not quite right only to be told I was a stressed mum of 5 and there was nothing wrong if only they had listened to me,as it is we are now on the nhs waiting list for a autistic diagnostic interview which I have been told will last a couple of hours the problem is we have been on the list since august 2011 and i have been told he is not going to be seen for a least another 9 months as nhs is so short staffed they haven't even seen anyone on that list for a couple of months,I was told by the nhs I could go private if I wanted but they are refusing to give me anin information on where to go,I feel I should not have to go down this route but if it will help my son I'm prepared to do anything,if anyone has any information on where I could go for this I would be very grateful,I live in Peterborough but would travel else where if needed,thanks Charlie x

Parents

  • Forget NHS NICE Guidelines.  The NHS pick and choose when to follow them!  I have been told by my advocate who contacted my local adult AS diagnosis clinic on my behalf, that the manager of the clinic stated NHS NICE Guidelines "are only guidelines and they don't have to follow them"!  (This was regarding how they are supposed to  carry out assessments!)

    Until that point I had faith in NICE as I thought it was the law (silly me, should have noticed the word "guidelines" and the fact that it says they are "advice" for NHS authoritiesSurprised)

    I previously contacted NHS PALS (the NHS complaints and patient liaison department) about the NHS recognising private diagnoses and was told that they can and do accept them, however they would expect a clinician in the field to be the one to do so - and that is at their discretion (what happened to rules and regulations!)

    Despite a majority of 3 independent professionals diagnosing me with Asperger's the clinic refuses to acknowledge my diagnosis as valid because as the manager of the clinic (which failed to diagnose me 3 years earlier) said "it would undermine their professional expertise" so they are more bothered by professional snobbery than the NHS Charter (and other documents) which state the NHS must adhere to it's responsibility to put the needs and welfare of the patient first.  How can you have faith in a system like that.

    The NHS is not fit for purpose, it's a shambles.

Reply

  • Forget NHS NICE Guidelines.  The NHS pick and choose when to follow them!  I have been told by my advocate who contacted my local adult AS diagnosis clinic on my behalf, that the manager of the clinic stated NHS NICE Guidelines "are only guidelines and they don't have to follow them"!  (This was regarding how they are supposed to  carry out assessments!)

    Until that point I had faith in NICE as I thought it was the law (silly me, should have noticed the word "guidelines" and the fact that it says they are "advice" for NHS authoritiesSurprised)

    I previously contacted NHS PALS (the NHS complaints and patient liaison department) about the NHS recognising private diagnoses and was told that they can and do accept them, however they would expect a clinician in the field to be the one to do so - and that is at their discretion (what happened to rules and regulations!)

    Despite a majority of 3 independent professionals diagnosing me with Asperger's the clinic refuses to acknowledge my diagnosis as valid because as the manager of the clinic (which failed to diagnose me 3 years earlier) said "it would undermine their professional expertise" so they are more bothered by professional snobbery than the NHS Charter (and other documents) which state the NHS must adhere to it's responsibility to put the needs and welfare of the patient first.  How can you have faith in a system like that.

    The NHS is not fit for purpose, it's a shambles.

Children
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