• Replies 22 replies
  • Subscribers 25 subscribers
  • Views 3413 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Looking to go private for a diagnosis on aspergers

Chazzer

Hi I'm hoping anyone that's reading this could help me,my 11 year old son was referred by his school in may 2011 as we think he has aspergers,I took my son to my GP when he was 7 as I knew there was something not quite right only to be told I was a stressed mum of 5 and there was nothing wrong if only they had listened to me,as it is we are now on the nhs waiting list for a autistic diagnostic interview which I have been told will last a couple of hours the problem is we have been on the list since august 2011 and i have been told he is not going to be seen for a least another 9 months as nhs is so short staffed they haven't even seen anyone on that list for a couple of months,I was told by the nhs I could go private if I wanted but they are refusing to give me anin information on where to go,I feel I should not have to go down this route but if it will help my son I'm prepared to do anything,if anyone has any information on where I could go for this I would be very grateful,I live in Peterborough but would travel else where if needed,thanks Charlie x

Parents

  • If I were you, I would ask the NHS department that advised you to go private, to have it in writing that they will recognise and accept a private diagnosis, and enable your son to access any NHS services required based on it.  This may sound silly as they were the ones who advised you to go private, but many PCTs don't recognise private diagnoses and you could still have to have the NHS assessment anyway.  At least stay on the NHS list if you do go private just in case, but you don't want to waste your hard earned money if it's all for nothing.  It could have been one person telling you in error, or they could be just saying it to fob you off, and unless you have it in writing there are no guarantees.

    You could take your son off sick from school with stress and let them involve the education welfare officer and threaten to home-educate him (even if you don't mean it) so that they will sit up and take notice and find an alternative for him.  There are small teaching units for children that can't handle school but you might have a big fight on your hands.  Of course you would need a helpful friend or relative to look after your son whilst he spent any time off school if you have to work.

Reply

  • If I were you, I would ask the NHS department that advised you to go private, to have it in writing that they will recognise and accept a private diagnosis, and enable your son to access any NHS services required based on it.  This may sound silly as they were the ones who advised you to go private, but many PCTs don't recognise private diagnoses and you could still have to have the NHS assessment anyway.  At least stay on the NHS list if you do go private just in case, but you don't want to waste your hard earned money if it's all for nothing.  It could have been one person telling you in error, or they could be just saying it to fob you off, and unless you have it in writing there are no guarantees.

    You could take your son off sick from school with stress and let them involve the education welfare officer and threaten to home-educate him (even if you don't mean it) so that they will sit up and take notice and find an alternative for him.  There are small teaching units for children that can't handle school but you might have a big fight on your hands.  Of course you would need a helpful friend or relative to look after your son whilst he spent any time off school if you have to work.

Children
No Data