Stressed Out.

Thinking of you! And here for you.

Thanks

I think I need to make a formal complaint about my treatment there.

The first question of the paperwork asks "By what name do I want to be addressed?"

I wrote Zarth, Destroyer of Planets.

They used my birth name instead when they called for me..     I feel so disrespected.   

On the positive side, the scan was quick and the staff were very switched on - I had explained about my autism and the strange things I might do when they stick needles into me - and to just carry on doing what they had to unless I actually told them to stop.

I had blood tests done at the same time so lots of dressings to peel off - maybe next month - when I'm feeling brave.  

Now I just have to worry about the results.

Thanks

I think I need to make a formal complaint about my treatment there.

The first question of the paperwork asks "By what name do I want to be addressed?"

I wrote Zarth, Destroyer of Planets.

They used my birth name instead when they called for me..     I feel so disrespected.   

On the positive side, the scan was quick and the staff were very switched on - I had explained about my autism and the strange things I might do when they stick needles into me - and to just carry on doing what they had to unless I actually told them to stop.

I had blood tests done at the same time so lots of dressings to peel off - maybe next month - when I'm feeling brave.  

Now I just have to worry about the results.

Could be interesting, though possibly not recommended. You could give a whole new meaning to painting the town red. 

I'm hapy to distract anyone.     I have crazy high blood pressure (used to be 210/160) and I'm on blood thinners -  I think I'd bleed like an aerosol spray if they accidentally cut me.    I could make my own Jackson Pollock as long as they like red. 

Abracadabra could work. Congratulations on your puddle, George is a lovely name. My blood always looks like frothy Ribena when they take it. But I've always been different. It really all is a lot to deal with, and I'm happy to be a distraction. Would make a change from distracting myself.

Abracadabra? 

When I spoke to the nurses on Wednesday, they say my bloods look good (I'm assuming it's red) and the oncologist will go over the scan results with me next week - probably on my birthday.   I wonder if he'll give me a card. 

I''m suffering from Ascites - a fluid build up in the abdomen - it's like being pregnant.    They drained me out once already back in December - almost 3 gallons came out - I effectively gave birth to a 27lb puddle.   I named him George. 

They say the chemo should sort it out eventually.    Or not.    It's all way too much uncertainty to deal with.  

I wish I could say something magical, but it would only sound hollow and cliche.

I really wanted them to shout the name across the waiting room.  

Maybe next time I'll put something easier for them - like Debbie.  

Thanks for your thoughts.    This is a very strange position to be in - living but dying at the same time.

What's the point of asking people their preferred name to only use your given name! I would seriously complain, although perhaps offer them a shorter version first, then complain. Glad the staff were otherwise acceptable. Remember that you are strong, you've basically lived your life on an alien planet where the majority of inhabitants make no sense. You have navigated through as though completing some epic treacherous journey, and you have succeeded. You can battle anything, with just strength of will alone. We will be with you!

Yes, thanks, the day went well-  I'm just really tired now but I need to stay up until 9pm to take all my meds. 

Plastic said:

Zarth, Destroyer of Planets.

That's made my day- Good one!

Sounds like today went well. Will keep you in my thoughts.