Confused by assessment process

My 4 year old has suspected high functioning autism.  She's had a diagnosis of sensory processing disorder since September (privately diagnosed by an OT, the NHS don't seem to recognise or offer therapy for it in our area), and when we saw the paediatrician for a review appointment earlier this month she said that she strongly suspects high functioning autism.  But this was based on anecdotal evidence from me, and the behaviour my daughter displayed during the appointment - which was with a strange person in a strange place - and there was no formal assessment. 

She's been seen by the Educational Psychologist (who agrees with the autism opinion), but no joy with speech and language therapy who seem to have a huge caseload and she isn't a priority it seems.  We're in the process of the statutory assessment process, supported by her nursery, in the hope of getting a statement before she starts in reception in September.  She already has 1:1 support in nursery, not with a qualified LSA but just with someone who is an extra adult, from what I can gather. 

I'm really confused by the whole process - at what point does the suspected autism become an official diagnosis?  Is there anything I can do to hurry along the SALT assessment beyond driving their receptionist mad with daily phone calls? 

I feel like this is taking over my life a bit, and would appreciate any advice.  Thanks!

Parents
  • Thanks so much for this advice.  I feel like I'm going round in circles at the moment, as having nagged further this afternoon the advice seems to be to submit the statutory assessment without the SALT report and hopefully that may spur them into action.  I suspect that's probably a way to try to keep me happy, and all that will happen is that the statutory assessment request will get bounced back along with a request for a SALT report.

    The paediatrician has written to me and the various professionals (GP, OT, SALT etc) saying she suspects ASD, and the Ed Psych has said his report, based on a meeting with me and the nursery staff plus observing my daughter in nursery should be back next week, so hopefully things might move forward.

    Like you, I've been told that the diagnosis doesn't matter and it's all based on the needs of the individual child, but I too take that with a pinch of salt.  I guess time will tell!  All I know is I've got a very bright little girl who is not going to learn much without additional support, and I desperately want that support to be in place before she starts reception.  So frustrating. 

    I hope you have had success in getting support for your son?  And thanks again for the advice x

     

Reply
  • Thanks so much for this advice.  I feel like I'm going round in circles at the moment, as having nagged further this afternoon the advice seems to be to submit the statutory assessment without the SALT report and hopefully that may spur them into action.  I suspect that's probably a way to try to keep me happy, and all that will happen is that the statutory assessment request will get bounced back along with a request for a SALT report.

    The paediatrician has written to me and the various professionals (GP, OT, SALT etc) saying she suspects ASD, and the Ed Psych has said his report, based on a meeting with me and the nursery staff plus observing my daughter in nursery should be back next week, so hopefully things might move forward.

    Like you, I've been told that the diagnosis doesn't matter and it's all based on the needs of the individual child, but I too take that with a pinch of salt.  I guess time will tell!  All I know is I've got a very bright little girl who is not going to learn much without additional support, and I desperately want that support to be in place before she starts reception.  So frustrating. 

    I hope you have had success in getting support for your son?  And thanks again for the advice x

     

Children
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