Selective Mutism - any advice?

Hello everyone,

My eight year old daughter is soon to be assessed for ASD and I expect there will be a diagnosis of ASD/Aspergers.

One of the most significant problems she faces is selective mutism.  She is terrified of talking to people she doesn't know well (i.e. everyone except parents, brother and one friend she made at her old school).  Even Grandma/Grandad have trouble getting her to speak, although she speaks freely with her immediate family.  Everything I've read suggests it's an anxiety response and she is extremely self-conscious in general.  With us though, she's a different girl - happy, funny and giggly a lot of the time.  She'll occasionally be like this with others, but it's fleeting and never seems to last.

Anyone got any ideas for how to help?  I've read a lot about selective mutism unrelated to autism, but the strategies there suggest something more of a pure phobia about speaking.  With my daughter, I think it's different - it's anxiety about social communication (not surprisingly)...  I'm worried it could get worse, but don't know how to stem the tide of any regression (mercifully, she just recently started talking to her childminder again who she goes to once a week, but I've been worried there's been a general regressive trend lately, aside from this).

Any ideas would be very welcome.  Autism-related literature on the subject is thin on the ground - or I'm looking in the wrong places....

Parents
  • Hi Pageant

     

    Hopefully you got my email details from the NAS community admin?

     

    Just wanted to say we have put forward the IPSEA letter requesting Statutory assessment and had a response the very next day - refusal to assess - they didn't take much time to think about that! 

     

    We would have to appeal now - I think that is what you said you did?  I have downloaded the info pack from IPSEA website but it all seems very daunting and scary - having to represent myself and get all the evidence, ask questions, get witnesses etc.  I think I will have to try my best though otherwise I will be letting my daughter down. 

    Any pointers gratefully received.

    Best wishes

Reply
  • Hi Pageant

     

    Hopefully you got my email details from the NAS community admin?

     

    Just wanted to say we have put forward the IPSEA letter requesting Statutory assessment and had a response the very next day - refusal to assess - they didn't take much time to think about that! 

     

    We would have to appeal now - I think that is what you said you did?  I have downloaded the info pack from IPSEA website but it all seems very daunting and scary - having to represent myself and get all the evidence, ask questions, get witnesses etc.  I think I will have to try my best though otherwise I will be letting my daughter down. 

    Any pointers gratefully received.

    Best wishes

Children
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