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A diagnosis finally!

Mush

I just had to post to say we got an autistic diagnosis today after a very long time and many meetings with various people! My ten year old is struggling to come to terms with it but at least we can start to get help, support and information.  Not sure how I feel about it and despite knowing that this was the likely outcome somehow it's still a shock.  No questions just wanted to tell somebody or everybody!! 

  • Hi Mush,

    This is my first post on the community as a new member. My 7 year old was diagnosed with Aspereger Syndrome just before Christmas after a traumatic year and loads of assessments. I think I went through the "grief" stage when it was first suggested a likely diagnosis by the paediatrician back in October and I started reading all of the books and the posts of various web sites ... I think it was the sudden realisation that there are other children out there just like him and to see his characteristics in print was such a shock. There was no doubt in my mind that this was the correct diagnosis so I was just relieved to get confirmation !   Like you we were lucky that the primary school had put processes in place on the assumption we would get that diagnosis so he has the 1:1 support that he needs at the moment.  They have suggested statementing as we have a middle school system here so he will change school after year 4 and again when he goes to high school. Our first meeting to emark on that process is next week and I undertand it can be a long and difficult battle in some cases. I hated the idea of labelling a child and found the idea of a statement quite distressing at first, but now I am sure it is the right thing to do and will be fighting tooth and nail to ensure he continues to get the support he needs.

     

     

  • hi Mush - just my opinion, but the thing to remember about a statement is that things don't stay the same.  So he may be doing well at the moment in his present school, but when he goes into secondary school that's a whole new ball game.  With a statement you have the opportunity to ask for help if he needs it in that setting.  Just think it's better to be prepared.  There are posts from some parents who have found their children struggled more in the secondary school setting.  As I sd, just my opinion.  bw

  • Thanks crystal, been a long time coming.  I have been blessed with his new school and they have already been supporting him as if he was ASD.  At the moment we are researching and answering a million and one questions from him.  He is mainly relieved that there is a genuine reason that he is different and now loves to call me a neuro-typical.  Not sure about the statement tho. 

  • hi Mush - congratulations on fighting for + getting the diagnosis.  You'll know there are lots of posts here about getting a diagnosis, so if you haven't, esp in relation to your son struggling with it, please have a gd look around.  Also look at the home page, if you haven't already.  A number of parents say that even tho they were expecting the diagnosis it can still come as a shock.  That appears to be a common reaction which parents adjust to over time at their own pace.  As you say the diagnosis will help him in many ways so it's a gd thing.  Are you getting a statement of educational needs as well, because that's important too?  bw