Mini Rant / Vent

OMG thats awful

Dedicated professionals making difficult compromises regarding broader public health, budget availability, resource allocations, safety in the workplace, managerial expectations, conflicting priorities and assuring optimal personal outcomes for patients. All on top of dealing with their own lives and careers.

I'm not sure I'd label them all as anything, let alone petty dictators. They're just normal people doing a difficult job.

Yes - I have to trust the top man - but I'm just worried that he's wrong and everyone else was right.      He's the senior surgeon and, through everyone else's incompetence, I've landed in his lap.

The problem is I can't tell what's going on inside - the blood thinning jabs cause everything to take many weeks to heal - and I had a rather thorough and brutal colonoscopy to take a load of biopsies (all came back negative) so the internal damage still hurts on the outside (visceral pain), the injection sites bruise really badly so it's all very tender - from ribs to waist - and I've managed to put on about 8 lbs in weight (deliberately) but it's mostly all gone on the tummy too - so it all just hurts.

To complicate things a bit further, the jabs seem to have put my colitis into remission so my intestines are cramping totally differently - so if there's anything terrible going on inside, I can't separate one pain from another.

yes sometimes they(the consultants) become too clincal and detached. The consultants (who are all powerful) sometimes forget there is a human being here dealing with their medical theories/research paths. 

but please go with the head-honcho guy, they are so very talented sometimes, and can make amazing discoveries. Its a long shot usually but go along with it.  

feedback that you are very stressed, cant sleep, and ask for some mind numbing sedatives.  ask the head-honcho for these if he says yes you'll get them.

wishing you well

Thanks - I just hope they give me a little extra meds to make me less acutely aware of what's going on.

Christ, that's an awkward situation! I suppose having a few shots of rum before going would be out of the question too. 

Hang on in there, we're all rooting for you here.

They will only do light sedation - my lungs have so many clots that they're worried I'll die on the table so the procedure can't happen with full sedation.       I've explained all of my autism problems and that if someone can talk to me about any subject - as fast as possible to keep my mind diverted and less able to focus on the pain, I should be able to do it - the need for data is far more important that my short-term psychological damage.

I've never been so terrified in my life.       I know exactly how much this is going to hurt - and they're probably going to do it 4 or 5 times in one go.

The painting will keep me from sitting crying all day.

Do they give you painkillers or a sedative before the operation? 

Best of luck with the painting if you feel up to it. 

I'm in a real dichotomy - I have to know what's going on inside me but I know the limits of my coping in that environment - the little internal 8-year old just want to run away and hide.     I can't think of anything else - which is not helping - there's not even anything involving on the tv.

I was 90% done building an extension on the house but I'm as weak as a kitten now.   I have a builder finishing it - I'll save a load of money if I spend all today pre-painting the exterior woodwork for him to fix up tomorrow.

Sounds very frustrating. I hope you can find something to comfort yourself with before the next operation. 

And it's good to vent, so good on you for doing it.

I agree the NHS is flawed. I believe healthcare should be affordable or free for people who need it but the NHS is too unaccountable. The Swiss and Dutch from what I understand have a better system. They can get it subsidised there as well but different private companies compete to provide the care, and the government regulates them well to fight corruption. 

I’m having this exact problem with my GP surgery. Lies, incompetence, rudeness, false promises and no accountability. If you get at all annoyed and dare to even slightly raise your voice  and they take the moral high ground and either hang up the phone or threaten security or some crap! 

Infuriating.

Hang in there!

Thanks

The problem is all the doctors have told me I have terminal cancer and the head-honcho has said he doesn't think so.      It's a total Mind F***     This could all have been sorted if they did their job properly 7 weeks ago.   

The first doctors were almost hinting at not to bother with Christmas cards so I've had to tidy my life up in a hurry..       If it is that serious, it's nearly 2 months without any actual treatment - I'm sure that will help me.

I've had so many blood-thinning injections in my stomach that it hurts so much that I cannot get comfortable in any position and my brain is so fried that I haven't slept in 2 months.

Just feeling very stressed. 

they must need more info, the ones they took probably didnt work as well as thet should or they need  to check something else. you cant just take biopsies for no reason all at once. It has always been a horrible process. 

wishing u the best of overcomes

Exactly - no real accountability, their job doesn't depend on positive outcomes and it's not them being messed around.    In the worst case, 'lessons will be learned' - until the next time.

Still, everyone claps for the NHS......

Jobsworths. No passion for people, just petty Dictators.

This is what happens whenever Healthcare is inextricably linked with Government.