Teenager with Asperger's- Hallucinations

Hi

My son is 17 and was diagnosed initially with prodromal psychosis, and later with Aspergers after a 4 month stint in a  day unit earlier in the year. I am reasonably confidant that this diagnosis is correct, because he was observed in a clinical environment amongst peers for a long time before it was made.

However, for around 3 years he has been having visual and auditory hallucinations also. He sees and hears somebody who isn't real. The consultant seems to think that this is all part of the ASD but I'm not so sure. I don't believe it is typical for people with autism to hallucinate. He has also suffered from delusions. He is currently taking Seroquel which he describes as 'turning down the volume'

I have a feeling that he might have co-morbid szchizophrenia, but I really hope he doesn't and that all of his disturbed thoughts are due to Asperger's. I'm finding all of this very difficult and have not had a great deal of support from CAMHS or anywhere else recently. He doesn't like to talk to me about any of this and everything I know I was told by other people- mainly my daughter. He forces me to leave the room when he's talking to his doctor about the hallucinations and has confidentiality which I also find very difficult as it limits my ability to help him in any constructive way. He has not told the doctor the full extent of his hallucinations and so I am worried that his diagnosis may not be complete.

any advice welcomed.

Cass

Parents
  • My son is 13 and is going through the system to get a diagnosis. He is also very anxious about school and in the last month has been having lots of different seizures/ panic attacks/ hallucinations. He is going to have an initial assessment and will be looked at to see if he has any form of epilspsy. I am so sad to hear of others going through similar experiences, but it is good to know we are not alone. I feel so helpless and feel that the length of time everything takes is only making matters worse. I am clinging to my friends' advice that we will get through it and it will improve for him. All the best to anyone going through the same thing.

Reply
  • My son is 13 and is going through the system to get a diagnosis. He is also very anxious about school and in the last month has been having lots of different seizures/ panic attacks/ hallucinations. He is going to have an initial assessment and will be looked at to see if he has any form of epilspsy. I am so sad to hear of others going through similar experiences, but it is good to know we are not alone. I feel so helpless and feel that the length of time everything takes is only making matters worse. I am clinging to my friends' advice that we will get through it and it will improve for him. All the best to anyone going through the same thing.

Children
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