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Teenager with Asperger's- Hallucinations

Cassie

Hi

My son is 17 and was diagnosed initially with prodromal psychosis, and later with Aspergers after a 4 month stint in a  day unit earlier in the year. I am reasonably confidant that this diagnosis is correct, because he was observed in a clinical environment amongst peers for a long time before it was made.

However, for around 3 years he has been having visual and auditory hallucinations also. He sees and hears somebody who isn't real. The consultant seems to think that this is all part of the ASD but I'm not so sure. I don't believe it is typical for people with autism to hallucinate. He has also suffered from delusions. He is currently taking Seroquel which he describes as 'turning down the volume'

I have a feeling that he might have co-morbid szchizophrenia, but I really hope he doesn't and that all of his disturbed thoughts are due to Asperger's. I'm finding all of this very difficult and have not had a great deal of support from CAMHS or anywhere else recently. He doesn't like to talk to me about any of this and everything I know I was told by other people- mainly my daughter. He forces me to leave the room when he's talking to his doctor about the hallucinations and has confidentiality which I also find very difficult as it limits my ability to help him in any constructive way. He has not told the doctor the full extent of his hallucinations and so I am worried that his diagnosis may not be complete.

any advice welcomed.

Cass

Parents

  • Hello, I have just registered too and my 13 year old is exactly the same as yours Sula.  His doctor at camhs has put him on rispiradol talblets for his anxiety and the faces and voices have gone away.  However this is now really upsetting him for despite the fact they were mostly threatening there were some good ones apparently.  he is now going through a grieving process for them and feels like he has killed his friends by taking the medication - so we have gone from the frying pan into the fire!

    The camhs drs are convinced this is the right path to follow but it is stressful,  he is also on medication for depression and halfway to a diagnosis of ASD.  He cannot cope with mainstream school anymore and currently attends a special medical education centre where he studies part time,  it is vastly better than school but he still has social difficulties with the other kids there and when he gets anxious he gets into arguments and makes horrible remarks to people.  According to camhs this is a kind of defence mechinism to make people scared of him and to get them to back off.

    Its good to hear someone else talking about faces and voices, I was so alarmed about it although now its been explained I feel better about it.  Does your son ever get angry at school?  All our sons angry and threatening behaviour has been at school (when anxiety is high) and we don't see it at home - thank goodness.  However its very stressfull - wondering if he will be OK each day.

Reply

  • Hello, I have just registered too and my 13 year old is exactly the same as yours Sula.  His doctor at camhs has put him on rispiradol talblets for his anxiety and the faces and voices have gone away.  However this is now really upsetting him for despite the fact they were mostly threatening there were some good ones apparently.  he is now going through a grieving process for them and feels like he has killed his friends by taking the medication - so we have gone from the frying pan into the fire!

    The camhs drs are convinced this is the right path to follow but it is stressful,  he is also on medication for depression and halfway to a diagnosis of ASD.  He cannot cope with mainstream school anymore and currently attends a special medical education centre where he studies part time,  it is vastly better than school but he still has social difficulties with the other kids there and when he gets anxious he gets into arguments and makes horrible remarks to people.  According to camhs this is a kind of defence mechinism to make people scared of him and to get them to back off.

    Its good to hear someone else talking about faces and voices, I was so alarmed about it although now its been explained I feel better about it.  Does your son ever get angry at school?  All our sons angry and threatening behaviour has been at school (when anxiety is high) and we don't see it at home - thank goodness.  However its very stressfull - wondering if he will be OK each day.

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