Can anyone help with my lovely 5 year old?

Hi there, I have a wonderful 5 year old son who seems to be finding life very stressful which is very upsetting to see and I wonder how best to help him? 

He likes routine and structure, and is very particular about certain things.  For example: he will only go to poo if he has taken all his clothes off and is squatting on top of the toilet seat, refuses to wear pants unless the labels are cut out or he becomes very distressed, asks for help with his shoes, then becomes very angry if they aren't done the right way and ends up throwing them.  When he has a meltdown these can last for up to an hour plus, and involve him hitting, punching, kicking members of his family and/orobjects very aggressively.  I feel like he isn't in control of himself as I have noticed him laughing and giggling while he is doing it, but I don't think this is in a malicious way.  When he is like this I move him away from things as far as I can and wait for it to pass, and removed myself and my daughter from the situation, as I have found that trying to speak to him exacerbates the situation.  When he has calmed down, he is very sorry and loving. 

For example, today he had another meltdown that lasted for about 30 minutes; this seemed to be triggered by me going on the seesaw with his sister at the park when he wanted to go home.  Because I didn't leave the park immediately (although I had explained we would do this next) he became angry and started smacking and kicking me, sobbing crying.  I talked calmly to him, but after leaving the park he refused to budge and ran off down a very busy road.  He was really distressed and yelling and sobbing.   He did eventually calm down and get in the car.  Later on it transpired that he was sad because he had done his show at school and his reindeer antler was rubbing and his teacher wouldn't let him take it off and he was sad and a bit worried about the show.  He said he was cross too because he had wanted to go home from the park and I hadn't listened to him and that I needed to say sorry. 

He has very fixed ideas about how things need to be and once he has made up his mind about something, all the explanation and reasoning in the world cannot shift his thinking. 

He also finds choices hard, eg: choosing a comic as a reward or a packet of sweets can take a very long time (20 minutes) and are potentially very tricky situations.  I have found myself now limiting his choices.  He really hates certain noises, eg: the handryers in toilets.   His language is good, he often uses quite complicated words or makes up unusual imaginary ones. 

This behaviour is becoming increasingly frequent, some days it can happen 3 or 4 times.  I initially went to see the GP when the outbursts weren't as frequent as this and she referred him to CAMHS because he was hurting me and his sister and showing risk taking behaviour.  They turned down the referral saying he didn't meet their threshold.  I am not sure what to do next.  School say that he's doing well and seem incredulous when I have raised my concerns before that it's the same child as the one in class.  I feel like he can just about hold it together at school but then at home all the stress comes out.

Have tried rewards, charts, etc, but with very limited success.

Any suggestions would be much appreciated!  I'm not sure where to go next to help him.  Has anyone experienced anything similar?  Thanks.

 

 

 

 

Parents
  • Fairy - you could have been describing my daughter at 5 yrs old. That was her to the letter!

    There was no reasoning at all, she would have huge tantrums over nothing at all! totally irrational behaviour. No matter how much i tried to reason, it just wasnt registering at all.  School always gave glowing reports and looked at me as if i had two heads when i said what she was like at home.  Her behaviour at school was exceptional. Still is. Doctors were the same, they just didnt want to know. We went to speech therapy with additional assessments and never got much further there either.

    I think with no diagnosis when you know something isnt right is very frustrating. I tried the reward charts, the bribing etc... but she would be really sorry after a mega tantrum but wouldnt say it. SHe would run past and throw a piece of paper at me with sorry on it. Never could say it.

    One lot of traits/problems/anxietys turns into other ones.  Now she doesnt have the tantrums, she has social problems, relating to others etc now that she's older... and we still havent had a diagnosis.

    However, she went to the doctors with me, and they thought she was having seizures... when we got there they picked up on anxiety and social skills and this is where we are now... they want her to have an assessment... halleluyah.. someone has noticed!!!!

    So i know exactly where youre at Fairy, i have been there too.  Only thing i can say is just try and keep on at your doctors for a referral, go to others in the practice til someone hopefully listens.

    I'm afraid doctors though dont like to be told as i've found out, they prefer to find the problems themselves and diagnose.

    Go back to docs and try again and again.. Can u see different doctors in your practice?.  Or ask to speak to a health visitor, for advice!! :0)

    best of luck, keep in touch

    Denise

Reply
  • Fairy - you could have been describing my daughter at 5 yrs old. That was her to the letter!

    There was no reasoning at all, she would have huge tantrums over nothing at all! totally irrational behaviour. No matter how much i tried to reason, it just wasnt registering at all.  School always gave glowing reports and looked at me as if i had two heads when i said what she was like at home.  Her behaviour at school was exceptional. Still is. Doctors were the same, they just didnt want to know. We went to speech therapy with additional assessments and never got much further there either.

    I think with no diagnosis when you know something isnt right is very frustrating. I tried the reward charts, the bribing etc... but she would be really sorry after a mega tantrum but wouldnt say it. SHe would run past and throw a piece of paper at me with sorry on it. Never could say it.

    One lot of traits/problems/anxietys turns into other ones.  Now she doesnt have the tantrums, she has social problems, relating to others etc now that she's older... and we still havent had a diagnosis.

    However, she went to the doctors with me, and they thought she was having seizures... when we got there they picked up on anxiety and social skills and this is where we are now... they want her to have an assessment... halleluyah.. someone has noticed!!!!

    So i know exactly where youre at Fairy, i have been there too.  Only thing i can say is just try and keep on at your doctors for a referral, go to others in the practice til someone hopefully listens.

    I'm afraid doctors though dont like to be told as i've found out, they prefer to find the problems themselves and diagnose.

    Go back to docs and try again and again.. Can u see different doctors in your practice?.  Or ask to speak to a health visitor, for advice!! :0)

    best of luck, keep in touch

    Denise

Children
No Data