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You believe its autism...

ceejaydj

hello there,

I am feeling very paranoid at the moment as my Daughter is due for an asd assessment next year.

Possible autism was picked up at 2yrs and through many assessments with different professionals she was added to the long waiting list for an assessment for a diagnosis.  Fortunatly, we were given a cancellation assessment when she was 4yrs but it was inconclusive and they felt it was too premature to diagnose her at that time as she had shown she was able to adjust to school etc

She will be 7ys next year and due for a review.

For the last few years i have thrown myself into learning as much as i can about autism and the gender differences and i am 100% convinced she has high functioning autism (she has a speech and language delay).

I have even researched all the co exsisting disorders that she may have instead of autsim but nothing fits aswell as HFA.  She ticks boxes for ADHD, ODD, verbal dyspraxia, sensory processing disorder, semantic pragmatic disorder...the list goes on

I am worried that they will not diagnose her.  She is in mainstream school and is the quiet one that does no wrong, sticks to all the rules and gets on with her work...the school cant underastand why she is on school action plus as they feel there is nothing wrong with her.

Has anyone else been in this position before?  That you feel 100% that your child has autism regardless of what the school thinks.

And, were you convinced your child had autism but to be told that after assessment they dont?

What will be will be, i just need to know now.

Thanks

Parents

  • I'm sort of on the opposite side here, I didn't have a clue my boy had Autism, infact I'd convinced myself that he didn't have it at all.

    I just saw him as a hyper toddler with some weird behavour that i thought he would grow out of, the only problem I felt was significant was his lack of speech.

    It was the health visitor that noticed he wasn't normal and refered him, within 12 months he got a diagnosis of Autism, all so fast it knocked me off my feet.

    What I don't understand is, why are so many professionals not diagnosing children, even refusing to see them, I mean surely getting a diagnosis (even if it turns out to be wrong) is better than leaving a child to cope in what must be a confusing world for them. At least they would recieve some sort of support and understanding as to why they are the way they are.

    It truely baffles me.

    When she goes for her assessment, push them, tell them that she needs support and she won't get that if they refuse to acknowledge that she has a problem. Be her strength and fight for what she deserves.

    It may also help to keep a diary, write down everything that you feel is significant. I have started to record videos of my boys habits on my phone to show his doctor then she can have a good insight into what he is like in normal day to day life.

    Good luck and I hope you both get what you need.

Reply

  • I'm sort of on the opposite side here, I didn't have a clue my boy had Autism, infact I'd convinced myself that he didn't have it at all.

    I just saw him as a hyper toddler with some weird behavour that i thought he would grow out of, the only problem I felt was significant was his lack of speech.

    It was the health visitor that noticed he wasn't normal and refered him, within 12 months he got a diagnosis of Autism, all so fast it knocked me off my feet.

    What I don't understand is, why are so many professionals not diagnosing children, even refusing to see them, I mean surely getting a diagnosis (even if it turns out to be wrong) is better than leaving a child to cope in what must be a confusing world for them. At least they would recieve some sort of support and understanding as to why they are the way they are.

    It truely baffles me.

    When she goes for her assessment, push them, tell them that she needs support and she won't get that if they refuse to acknowledge that she has a problem. Be her strength and fight for what she deserves.

    It may also help to keep a diary, write down everything that you feel is significant. I have started to record videos of my boys habits on my phone to show his doctor then she can have a good insight into what he is like in normal day to day life.

    Good luck and I hope you both get what you need.

Children
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