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Diagnosis Process - ASD, Parents How do you feel?

Jess7

Hello, My brother was Diagnosed with Aspergers Syndrome (and numerous other diagnosis') when he was 6/7 and ever since then, I have had a keen interest in the diagnosis of ASD and how it effects families. I left school with 5 A-levels and decided to study Special Needs and Inclusion Studies at University. I'm currently preparing to carry out research in how professionals deal with parents and how parents feel? whether parents have been blamed in any way? My parents were blamed for not buying my brother properly fitted shoes and being overprotective and not taking him for regular eye tests Undecided 

[A request for information and a personal email address has been removed from this post. Information on research requests can be found here:  http://www.autism.org.uk/about-autism/research/requests-for-research-and-participation.aspx

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Parents

  • Hi Jess,

     

    I am currently going through the process of getting my two boys assessed for ASD.  They are both very young - 2 and 3 - so getting the Health Visitors/GP's on our side and to take what our concerns were was difficult.  The wait times to be seen is somewhat ridiculous, too - we started the process last year, and have now only just been seen by a developmental Paediatrician, and will have to wait another few months (up to 6 months) to be seen by a panel to determine the way forward.

    I do understand that, as my sons are very young, the doctors are reluctant to label them as autistic (they could change dramatically quite quickly).  The thing that I don't understand is why support can't be put in place first before assigning a label; while I am sitting here waiting for my next appointment, my son is not getting help with his talking and social play. 

    As the process goes on, I will continue to update you so that you know what my experiences are. 

    Kx

Reply

  • Hi Jess,

     

    I am currently going through the process of getting my two boys assessed for ASD.  They are both very young - 2 and 3 - so getting the Health Visitors/GP's on our side and to take what our concerns were was difficult.  The wait times to be seen is somewhat ridiculous, too - we started the process last year, and have now only just been seen by a developmental Paediatrician, and will have to wait another few months (up to 6 months) to be seen by a panel to determine the way forward.

    I do understand that, as my sons are very young, the doctors are reluctant to label them as autistic (they could change dramatically quite quickly).  The thing that I don't understand is why support can't be put in place first before assigning a label; while I am sitting here waiting for my next appointment, my son is not getting help with his talking and social play. 

    As the process goes on, I will continue to update you so that you know what my experiences are. 

    Kx

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