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Diagnosis Process - ASD, Parents How do you feel?

Jess7

Hello, My brother was Diagnosed with Aspergers Syndrome (and numerous other diagnosis') when he was 6/7 and ever since then, I have had a keen interest in the diagnosis of ASD and how it effects families. I left school with 5 A-levels and decided to study Special Needs and Inclusion Studies at University. I'm currently preparing to carry out research in how professionals deal with parents and how parents feel? whether parents have been blamed in any way? My parents were blamed for not buying my brother properly fitted shoes and being overprotective and not taking him for regular eye tests Undecided 

[A request for information and a personal email address has been removed from this post. Information on research requests can be found here:  http://www.autism.org.uk/about-autism/research/requests-for-research-and-participation.aspx

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Parents

  • My 3 yr old son has only just been diagnosed (less than 3 weeks ago) and so far i haven't experienced any negativity, although I expect i will most like have to deal with some at some point.

    Everyone involved with us has been really good, very supportive and helpful.

    The paediatrican prepared me for the diagnosis before it was official, but it still didn't hit home until he got the label (official diagnosis). Of course everything seemed so much harder then, constantly researching ASD and related problems, overloading ourrselves with information until we can't take anymore and then realising that this is a forever thing, he won't just snap out of it and be 'a normal kid' one day and instead we need adjust our way of doing things to meet his needs and help him progress. 

    Its easy to get swept away in our own felings and emotions, but at the end of the day, we still have a happy and healthy little boy, he just needs that extra bit of love and patience.

    So to sum it all up, the professionals involved have been everything we'd expect so far, but the shock of the diagnosis its self is quite a bit to deal with.

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  • My 3 yr old son has only just been diagnosed (less than 3 weeks ago) and so far i haven't experienced any negativity, although I expect i will most like have to deal with some at some point.

    Everyone involved with us has been really good, very supportive and helpful.

    The paediatrican prepared me for the diagnosis before it was official, but it still didn't hit home until he got the label (official diagnosis). Of course everything seemed so much harder then, constantly researching ASD and related problems, overloading ourrselves with information until we can't take anymore and then realising that this is a forever thing, he won't just snap out of it and be 'a normal kid' one day and instead we need adjust our way of doing things to meet his needs and help him progress. 

    Its easy to get swept away in our own felings and emotions, but at the end of the day, we still have a happy and healthy little boy, he just needs that extra bit of love and patience.

    So to sum it all up, the professionals involved have been everything we'd expect so far, but the shock of the diagnosis its self is quite a bit to deal with.

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