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Diagnosis Process - ASD, Parents How do you feel?

Jess7

Hello, My brother was Diagnosed with Aspergers Syndrome (and numerous other diagnosis') when he was 6/7 and ever since then, I have had a keen interest in the diagnosis of ASD and how it effects families. I left school with 5 A-levels and decided to study Special Needs and Inclusion Studies at University. I'm currently preparing to carry out research in how professionals deal with parents and how parents feel? whether parents have been blamed in any way? My parents were blamed for not buying my brother properly fitted shoes and being overprotective and not taking him for regular eye tests Undecided 

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  • hi Jessica - it's a long time ago now so I don't know how relevant my experience is because it was in the later 1980s.  His total lack of speech kicked things off, so he went to speech therapy.  A speech therapist said he wasn't an ordinary little boy.  From there he went into a full diagnostic process but I can't remember whether autism was mentioned from the start - I don't think it was.  It took about 9 months for the diagnosis.  I remember all the professionals in a positive way.  He was finally officially diagnosed by a paediatrican. He of course mentioned autism.   I asked him if he had any info I cd take home.  He didn't but found a leaflet from a school for children with autism + gave me that.  That was all he had.  Nobody blamed me.  Some professionals discussed with me whether to say he had autism of autistic tendencies. The "tendencies" was meant to take the edge off it somewhat, I think.  I asked them if he had autism + they sd he had, so I said then we can do without the "tendencies".  In the 80s few people had a pc, so it was off to the library for info.  There were 2 books there.  1 was about the now discredited holding technique.  The other was treating autism via psychoanalysis.  After reading these 2 books I thought my son's autism had been caused by me because that's what the books said.  That's what I told anyone who asked.  The word "autism" wasn't as well known as it is now.  Later on I found the nas + that made a big difference.

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  • hi Jessica - it's a long time ago now so I don't know how relevant my experience is because it was in the later 1980s.  His total lack of speech kicked things off, so he went to speech therapy.  A speech therapist said he wasn't an ordinary little boy.  From there he went into a full diagnostic process but I can't remember whether autism was mentioned from the start - I don't think it was.  It took about 9 months for the diagnosis.  I remember all the professionals in a positive way.  He was finally officially diagnosed by a paediatrican. He of course mentioned autism.   I asked him if he had any info I cd take home.  He didn't but found a leaflet from a school for children with autism + gave me that.  That was all he had.  Nobody blamed me.  Some professionals discussed with me whether to say he had autism of autistic tendencies. The "tendencies" was meant to take the edge off it somewhat, I think.  I asked them if he had autism + they sd he had, so I said then we can do without the "tendencies".  In the 80s few people had a pc, so it was off to the library for info.  There were 2 books there.  1 was about the now discredited holding technique.  The other was treating autism via psychoanalysis.  After reading these 2 books I thought my son's autism had been caused by me because that's what the books said.  That's what I told anyone who asked.  The word "autism" wasn't as well known as it is now.  Later on I found the nas + that made a big difference.

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