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Asperger Syndrome should the label stay?

David

My family and I refused to believe that I was Autistic until we were told in family therapy in 1990 that I had Asperger Syndrome.

 

In 1966 aged nine a Psychiatrist wanted to send me to a special school for Autistic children.

She looked up Autism in the dictionary and it said that Autistic children cannot speak.

By the age of nine I could speak fluently so she thought I could not possible be Autistic so I went to main stream schools.

In 1976 a Psychiatrist who visited us said that I was mildly Autistic.

We did not believe him either and his successor also said that I was not Autistic.

 

In 1990 my Father asked in family therapy when I was not in the room if I had been more strictly brought up whether I would have turned out better.

The family therapist said that the way I am has nothing to do with up bringing but because I have Asperger Syndrome.

After that we could believe that I have Asperger Syndrome and my Father stopped blaming my Mother for how I am.

As a matter of fact the only thing on my records is the Psychiatrist in 1976 who said that I was mildly Autistic

The question must be asked is how are we going to describe people who are not really Autistic at all.

We could describe Asperger people as just having Autistic traits.

The difference between an Asperger person and a so calle.d NT person can be very slight and the difference between an Asperger person and an Autistic person is often great.

We should not lump Asperger people with Autistic people.

The NAS leaflets would have to be changed if the Asperger label disappeared.

It could be a step back removing the Asperger label which I understand they are going to do next year in the USA.

David

Parents

  • I would not loose my diagnoses because Psychiatrists considered me Autistic long before the Asperger label came out.

    In 1966 a Psychiatrist wanted to send me to an Autistic school which my Mother did not agree to send me to.

    In 1976 a Psychiatrist said I was mildly Autistic which my GP told me in 2009 that is the equivalent today of Asperger Syndrome.

    I suppose if you are diagnosed with Asperger Syndrome you could convert the diagnoses to a form of Autism once the label is phased out.

    The advantage of getting rid of the label it will save paper on leaflets What is Asperger Syndrome.

    We are so different from each other and most people with Asperger have Co-Existing conditions so it is difficult to define what exactly Asperger is.

    It is wrong to sterotype Asperger people who only have Autistic traits.

     

    On the other hand if we do not keep the label it will be difficult to campaign for people at the top end of the spectrum who only have a few Autistic traits.

    It might be mild that they only have slight communication problems but have serious

    Co-Existing conditions.

    Then a right a correct diagnoses would be mild Autism with serious Co-Existing Conditions.

    David

Reply

  • I would not loose my diagnoses because Psychiatrists considered me Autistic long before the Asperger label came out.

    In 1966 a Psychiatrist wanted to send me to an Autistic school which my Mother did not agree to send me to.

    In 1976 a Psychiatrist said I was mildly Autistic which my GP told me in 2009 that is the equivalent today of Asperger Syndrome.

    I suppose if you are diagnosed with Asperger Syndrome you could convert the diagnoses to a form of Autism once the label is phased out.

    The advantage of getting rid of the label it will save paper on leaflets What is Asperger Syndrome.

    We are so different from each other and most people with Asperger have Co-Existing conditions so it is difficult to define what exactly Asperger is.

    It is wrong to sterotype Asperger people who only have Autistic traits.

     

    On the other hand if we do not keep the label it will be difficult to campaign for people at the top end of the spectrum who only have a few Autistic traits.

    It might be mild that they only have slight communication problems but have serious

    Co-Existing conditions.

    Then a right a correct diagnoses would be mild Autism with serious Co-Existing Conditions.

    David

Children
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