Asperger Syndrome should the label stay?

My family and I refused to believe that I was Autistic until we were told in family therapy in 1990 that I had Asperger Syndrome.

 

In 1966 aged nine a Psychiatrist wanted to send me to a special school for Autistic children.

She looked up Autism in the dictionary and it said that Autistic children cannot speak.

By the age of nine I could speak fluently so she thought I could not possible be Autistic so I went to main stream schools.

In 1976 a Psychiatrist who visited us said that I was mildly Autistic.

We did not believe him either and his successor also said that I was not Autistic.

 

In 1990 my Father asked in family therapy when I was not in the room if I had been more strictly brought up whether I would have turned out better.

The family therapist said that the way I am has nothing to do with up bringing but because I have Asperger Syndrome.

After that we could believe that I have Asperger Syndrome and my Father stopped blaming my Mother for how I am.

As a matter of fact the only thing on my records is the Psychiatrist in 1976 who said that I was mildly Autistic

The question must be asked is how are we going to describe people who are not really Autistic at all.

We could describe Asperger people as just having Autistic traits.

The difference between an Asperger person and a so calle.d NT person can be very slight and the difference between an Asperger person and an Autistic person is often great.

We should not lump Asperger people with Autistic people.

The NAS leaflets would have to be changed if the Asperger label disappeared.

It could be a step back removing the Asperger label which I understand they are going to do next year in the USA.

David

Parents
  • The other thing about "mildly autistic" is that it is quite meaningless. This idea of a continuum is a nice simplification, but as Scorpion0x17 has reminded us, quoting Tony Attwood, that we're all different and the range of manifestations is very different.

    One factor that is not discussed much is "coping strategies". Most people with a disability cope to varying degrees with their disabling factors. With autism I suspect most people develop coping strategies but the more marked or complex the symptoms the harder it is to sustain the coping strategy.

    Correspondingly towards the "milder" end, the coping strategy may appear to compensate substantially, so it looks like "mild" autism. But it is still there, just the individual has found ways of compensating. Unfortunately our coping strategies tend to wear off when we tire from trying or the environment gets harsher.

    More unfortunately, as GPs and other health workers (and those benefits office assessors with no idea what they are on about) only see us for very short times.

    The word "mild" should never be used with reference to autism.  The only mild is when you haven't actually got it.

Reply
  • The other thing about "mildly autistic" is that it is quite meaningless. This idea of a continuum is a nice simplification, but as Scorpion0x17 has reminded us, quoting Tony Attwood, that we're all different and the range of manifestations is very different.

    One factor that is not discussed much is "coping strategies". Most people with a disability cope to varying degrees with their disabling factors. With autism I suspect most people develop coping strategies but the more marked or complex the symptoms the harder it is to sustain the coping strategy.

    Correspondingly towards the "milder" end, the coping strategy may appear to compensate substantially, so it looks like "mild" autism. But it is still there, just the individual has found ways of compensating. Unfortunately our coping strategies tend to wear off when we tire from trying or the environment gets harsher.

    More unfortunately, as GPs and other health workers (and those benefits office assessors with no idea what they are on about) only see us for very short times.

    The word "mild" should never be used with reference to autism.  The only mild is when you haven't actually got it.

Children
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