Asperger Syndrome should the label stay?

My family and I refused to believe that I was Autistic until we were told in family therapy in 1990 that I had Asperger Syndrome.

 

In 1966 aged nine a Psychiatrist wanted to send me to a special school for Autistic children.

She looked up Autism in the dictionary and it said that Autistic children cannot speak.

By the age of nine I could speak fluently so she thought I could not possible be Autistic so I went to main stream schools.

In 1976 a Psychiatrist who visited us said that I was mildly Autistic.

We did not believe him either and his successor also said that I was not Autistic.

 

In 1990 my Father asked in family therapy when I was not in the room if I had been more strictly brought up whether I would have turned out better.

The family therapist said that the way I am has nothing to do with up bringing but because I have Asperger Syndrome.

After that we could believe that I have Asperger Syndrome and my Father stopped blaming my Mother for how I am.

As a matter of fact the only thing on my records is the Psychiatrist in 1976 who said that I was mildly Autistic

The question must be asked is how are we going to describe people who are not really Autistic at all.

We could describe Asperger people as just having Autistic traits.

The difference between an Asperger person and a so calle.d NT person can be very slight and the difference between an Asperger person and an Autistic person is often great.

We should not lump Asperger people with Autistic people.

The NAS leaflets would have to be changed if the Asperger label disappeared.

It could be a step back removing the Asperger label which I understand they are going to do next year in the USA.

David

Parents
  • Yes I have Co- Existing conditions.

    I have difficulty recognizing people so I could not possibly really do the emothion tests for Ofer Golan.  At the time I thought it was Asperger Syndrome but most Asperger people can recognize other people.  I also get lost easialy that again is not Asperger Syndrome.  Do you all know about the mind reading tests organised by Simon Baron Cohen in Cambrige.  I should really have refused to do the tests as I probably have prosognosia as well as Asperger Syndrome.

    I have perception problems so someone stopped testing me when she saw my verbal reasoinging was good but my perception was poor.  She was doing research into Autism.

    I am also not well co-ordinated so I probably have Dyspraxia.

    As for Dyslexia I  found it difficult to learn to read when I was a child but my Mother helped me.  I still have trouble spelling.

    I took a test by the Dyslexia institute a few years ago and the lady who anylised the tests said I do not have dyslexia and all my problems can be accounted for by Asperger Syndrome.  I expect when I was younger I would have counted as having Dyslexia.  I got six O Levels and two A Levels but never got the required C in English.

    This what makes me think we should have an all embracing label with an explanation with the diagnoses.

    David

Reply
  • Yes I have Co- Existing conditions.

    I have difficulty recognizing people so I could not possibly really do the emothion tests for Ofer Golan.  At the time I thought it was Asperger Syndrome but most Asperger people can recognize other people.  I also get lost easialy that again is not Asperger Syndrome.  Do you all know about the mind reading tests organised by Simon Baron Cohen in Cambrige.  I should really have refused to do the tests as I probably have prosognosia as well as Asperger Syndrome.

    I have perception problems so someone stopped testing me when she saw my verbal reasoinging was good but my perception was poor.  She was doing research into Autism.

    I am also not well co-ordinated so I probably have Dyspraxia.

    As for Dyslexia I  found it difficult to learn to read when I was a child but my Mother helped me.  I still have trouble spelling.

    I took a test by the Dyslexia institute a few years ago and the lady who anylised the tests said I do not have dyslexia and all my problems can be accounted for by Asperger Syndrome.  I expect when I was younger I would have counted as having Dyslexia.  I got six O Levels and two A Levels but never got the required C in English.

    This what makes me think we should have an all embracing label with an explanation with the diagnoses.

    David

Children
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