Asperger Syndrome should the label stay?

My family and I refused to believe that I was Autistic until we were told in family therapy in 1990 that I had Asperger Syndrome.

 

In 1966 aged nine a Psychiatrist wanted to send me to a special school for Autistic children.

She looked up Autism in the dictionary and it said that Autistic children cannot speak.

By the age of nine I could speak fluently so she thought I could not possible be Autistic so I went to main stream schools.

In 1976 a Psychiatrist who visited us said that I was mildly Autistic.

We did not believe him either and his successor also said that I was not Autistic.

 

In 1990 my Father asked in family therapy when I was not in the room if I had been more strictly brought up whether I would have turned out better.

The family therapist said that the way I am has nothing to do with up bringing but because I have Asperger Syndrome.

After that we could believe that I have Asperger Syndrome and my Father stopped blaming my Mother for how I am.

As a matter of fact the only thing on my records is the Psychiatrist in 1976 who said that I was mildly Autistic

The question must be asked is how are we going to describe people who are not really Autistic at all.

We could describe Asperger people as just having Autistic traits.

The difference between an Asperger person and a so calle.d NT person can be very slight and the difference between an Asperger person and an Autistic person is often great.

We should not lump Asperger people with Autistic people.

The NAS leaflets would have to be changed if the Asperger label disappeared.

It could be a step back removing the Asperger label which I understand they are going to do next year in the USA.

David

Parents
  • Yes, I think this is true. I know a person with AS who has epilepsy, one with dyspraxia and speech impediment, another with mild psychosis, one with OCD, another with depression - they all attend my AS social group. Speaking for myself, I have OCD and ongoing anxiety, which I experience every day. I have a visual-spatial learning difficulty, which has got better over time but which I still struggle with, and I have discalculia - maths impairment.  I struggle with some practical tasks which involve coordination and  multi-tasking, and I can get easily distracted during the completion of practical tasks and with following multiple instructions. These difficulties are not severe enough to merit the label dyspraxia, but I consider them to be part of my aspergers, and yet  many people just look at the social difficulties. So I agree that  an awareness of neuro-diversity within the AS diagnosis is vital.

Reply
  • Yes, I think this is true. I know a person with AS who has epilepsy, one with dyspraxia and speech impediment, another with mild psychosis, one with OCD, another with depression - they all attend my AS social group. Speaking for myself, I have OCD and ongoing anxiety, which I experience every day. I have a visual-spatial learning difficulty, which has got better over time but which I still struggle with, and I have discalculia - maths impairment.  I struggle with some practical tasks which involve coordination and  multi-tasking, and I can get easily distracted during the completion of practical tasks and with following multiple instructions. These difficulties are not severe enough to merit the label dyspraxia, but I consider them to be part of my aspergers, and yet  many people just look at the social difficulties. So I agree that  an awareness of neuro-diversity within the AS diagnosis is vital.

Children
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