Asperger Syndrome should the label stay?

My family and I refused to believe that I was Autistic until we were told in family therapy in 1990 that I had Asperger Syndrome.

 

In 1966 aged nine a Psychiatrist wanted to send me to a special school for Autistic children.

She looked up Autism in the dictionary and it said that Autistic children cannot speak.

By the age of nine I could speak fluently so she thought I could not possible be Autistic so I went to main stream schools.

In 1976 a Psychiatrist who visited us said that I was mildly Autistic.

We did not believe him either and his successor also said that I was not Autistic.

 

In 1990 my Father asked in family therapy when I was not in the room if I had been more strictly brought up whether I would have turned out better.

The family therapist said that the way I am has nothing to do with up bringing but because I have Asperger Syndrome.

After that we could believe that I have Asperger Syndrome and my Father stopped blaming my Mother for how I am.

As a matter of fact the only thing on my records is the Psychiatrist in 1976 who said that I was mildly Autistic

The question must be asked is how are we going to describe people who are not really Autistic at all.

We could describe Asperger people as just having Autistic traits.

The difference between an Asperger person and a so calle.d NT person can be very slight and the difference between an Asperger person and an Autistic person is often great.

We should not lump Asperger people with Autistic people.

The NAS leaflets would have to be changed if the Asperger label disappeared.

It could be a step back removing the Asperger label which I understand they are going to do next year in the USA.

David

Parents
  • Former Member
    Former Member

    birdalone said:
    I dont feel there is a need for a separate label of Aspergers syndrome. HFA is just fine.

    There must have been a good  reason for orginally applying a separate label for Asperger's Syndrome. 

    To any query as to what is the difference the usual answer is  that those diagnosed with HFA have speech problems - either late development, or the need for therapy in order to obtain a 'normal' level of speech. 

    I've also seen it stated that people diagnosed with AS generally have an awareness of their disability and that they are 'different' from others, coupled with a desire to be like everyone else i.e. have friends, a girl/boyfriend or a job which often causes problems for the individual,  and which differentiates them from those with HFA.

    If indeed there are differences  then I don't think that putting them both under the same umbrella of HFA would be in any way fine.

     

     

Reply
  • Former Member
    Former Member

    birdalone said:
    I dont feel there is a need for a separate label of Aspergers syndrome. HFA is just fine.

    There must have been a good  reason for orginally applying a separate label for Asperger's Syndrome. 

    To any query as to what is the difference the usual answer is  that those diagnosed with HFA have speech problems - either late development, or the need for therapy in order to obtain a 'normal' level of speech. 

    I've also seen it stated that people diagnosed with AS generally have an awareness of their disability and that they are 'different' from others, coupled with a desire to be like everyone else i.e. have friends, a girl/boyfriend or a job which often causes problems for the individual,  and which differentiates them from those with HFA.

    If indeed there are differences  then I don't think that putting them both under the same umbrella of HFA would be in any way fine.

     

     

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