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Asperger Syndrome should the label stay?

David

My family and I refused to believe that I was Autistic until we were told in family therapy in 1990 that I had Asperger Syndrome.

 

In 1966 aged nine a Psychiatrist wanted to send me to a special school for Autistic children.

She looked up Autism in the dictionary and it said that Autistic children cannot speak.

By the age of nine I could speak fluently so she thought I could not possible be Autistic so I went to main stream schools.

In 1976 a Psychiatrist who visited us said that I was mildly Autistic.

We did not believe him either and his successor also said that I was not Autistic.

 

In 1990 my Father asked in family therapy when I was not in the room if I had been more strictly brought up whether I would have turned out better.

The family therapist said that the way I am has nothing to do with up bringing but because I have Asperger Syndrome.

After that we could believe that I have Asperger Syndrome and my Father stopped blaming my Mother for how I am.

As a matter of fact the only thing on my records is the Psychiatrist in 1976 who said that I was mildly Autistic

The question must be asked is how are we going to describe people who are not really Autistic at all.

We could describe Asperger people as just having Autistic traits.

The difference between an Asperger person and a so calle.d NT person can be very slight and the difference between an Asperger person and an Autistic person is often great.

We should not lump Asperger people with Autistic people.

The NAS leaflets would have to be changed if the Asperger label disappeared.

It could be a step back removing the Asperger label which I understand they are going to do next year in the USA.

David

Parents

  • The American Psychiatric Association want to get rid of the term Asperger Syndrome in May 2013 and replace it with mild Autism.   They are doing it in a manual called DSM 5.

     

     

    On careful reading those who already diagnosed with Asperger Syndrome will keep the label and Doctors will be able still be able to use the term Asperger Syndrome unofficially.

     

    Mary who sadly died used to say that most people with Asperger Syndrome have Co-Existing Conditions.

    I probably have Dyspraxia as when I worked at Waitrose they complained that I was too slow with the packing and taking shopping across the road.  The DEA tried to say that it has nothing to do with my disability as the employers are not complaining about my social skills.

    I think it would be a good idea to replace Asperger Syndrome with a new Neuro Diverse Label which includes Asperger Syndrome Dyslexia Dyspraxia Attention Deficit Disorder.  The Diagnoses should include a statement of needs.

    The organisation DANDA embraces these conditions which the late Mary Colley founded.

    Unfortunately there appears no plans to replace Asperger Syndrome with a new Neuro Diverse Label but those of us who are worried about loosing their diagnoses of Asperger Syndrome need not worry as it is not going to happen.

    David

    Looking forward to replies.

     

Reply

  • The American Psychiatric Association want to get rid of the term Asperger Syndrome in May 2013 and replace it with mild Autism.   They are doing it in a manual called DSM 5.

     

     

    On careful reading those who already diagnosed with Asperger Syndrome will keep the label and Doctors will be able still be able to use the term Asperger Syndrome unofficially.

     

    Mary who sadly died used to say that most people with Asperger Syndrome have Co-Existing Conditions.

    I probably have Dyspraxia as when I worked at Waitrose they complained that I was too slow with the packing and taking shopping across the road.  The DEA tried to say that it has nothing to do with my disability as the employers are not complaining about my social skills.

    I think it would be a good idea to replace Asperger Syndrome with a new Neuro Diverse Label which includes Asperger Syndrome Dyslexia Dyspraxia Attention Deficit Disorder.  The Diagnoses should include a statement of needs.

    The organisation DANDA embraces these conditions which the late Mary Colley founded.

    Unfortunately there appears no plans to replace Asperger Syndrome with a new Neuro Diverse Label but those of us who are worried about loosing their diagnoses of Asperger Syndrome need not worry as it is not going to happen.

    David

    Looking forward to replies.

     

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