what to do after diagnosis

Hello i am just looking for guidance really, we have been back and forth to the doctors since our son was 2, he had speech therapy and always seemed diffrent to our other children, very unsettled and on edge most of the time, cutting a long list of problems short and getting to the point we have a few weeks ago had a DISCO appointment with the Pediatrician who asked lots of questions about our son and his time since he was born(he is 6 now) , we received a letter a few weeks later from the doctor saying diagnosis ASD refere to CAMHS (hope that is the correct spelling), so now what do i do iv gone to school and asked if my son needs a statement and as he has special help reading already and he is supposed to be on par with his maths they say he will not get statemented as the council is trying to phase it out and they have no concerns with him in other areas urgh, my whole time and appointments for this diagnosis was to get him extra help in school so he can be where he should be instead of dragging behind in class, he has not got the attention span to keep up in my opinion but school are making me feel like im fussing over nothing(well someone needs to be the slowest in class and it will be him if help isnt given) his efforts that he puts in is not reflected in his ability that he gets out of class.

anyway i am refered to CAHMS even though i have heard nothing other than this what should i be doing next, i feel funny about bringing benefits up as it as it was the school help i wanted and now im not going to get it i feel in a flap.

Parents
  • Have a chat with your local Parent Partnership.  They are there to advise parents with children with additional needs and they HAVE to be impartial.  They should be able to tell you how and where to start and who to launch your campaign with.

    Our experience was different as my son was diagnosed at 2.5yrs - we had stacks of help at the beginning but I was really shocked at how much it tailed off when he joined school.  He is now 6 and in year 2.  Concerned that a lot of the professionals were fading away into the background I recently pushed for him to see an educational psychologist through the school (as the one that saw him for his statement was so great) but it was not a successful meeting at all.  Another one that'll be great if his funding is under threat, but a real heart-sinker.  She didn't tell us anything that we did not know already and it was a bit of a waste of time.  I fear that at your son's age it'll mainly be the SENCO and not much more on offer through school.  We have had some success with the council's autism outreach worker who our SENCO found to help solve issues at playtime.

    Really good luck with this all x

Reply
  • Have a chat with your local Parent Partnership.  They are there to advise parents with children with additional needs and they HAVE to be impartial.  They should be able to tell you how and where to start and who to launch your campaign with.

    Our experience was different as my son was diagnosed at 2.5yrs - we had stacks of help at the beginning but I was really shocked at how much it tailed off when he joined school.  He is now 6 and in year 2.  Concerned that a lot of the professionals were fading away into the background I recently pushed for him to see an educational psychologist through the school (as the one that saw him for his statement was so great) but it was not a successful meeting at all.  Another one that'll be great if his funding is under threat, but a real heart-sinker.  She didn't tell us anything that we did not know already and it was a bit of a waste of time.  I fear that at your son's age it'll mainly be the SENCO and not much more on offer through school.  We have had some success with the council's autism outreach worker who our SENCO found to help solve issues at playtime.

    Really good luck with this all x

Children
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