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Fear of and Necessity for Labels

Jim V - mod

AndrewC posted this discussion in the guide, before I realised my mistake in how they were written. So I'm just creating this on his behalf so people can respond to the message.

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I know a number of people are put of going for early diagnosis because they fear labelling their child or are not themselves emotionally ready for that label.

Unfortunately, labels can also be necessary/hugely beneficial in accessing the right support services for your child, particularly re education.

 

Perhaps this would be a good thread for people to share what their concerns were/are about going for diagnosis, and whether obtaining a diagnosis has been positive or negative overall?

Parents

  • perhaps lack of understanding in the larger world would be easier to bear if there was a stronger support base for adults in the world of support for autism...one only has to look through any asd related journal including "communication" to see that almost all support advertising is directed at young people...schools,respite,colleges ,residential etc..its really like you fall off the radar at 25..

    imagine looking in these same mags and seeing regional resourse centres,social centres,dropin centres,supported work environments,respite care centres for people with HFA\aspergers...for those of us who cannot function independantly but are not deemed to be learning disabled..or dont have severely challenging behaviour.in my area there is no where to go at all after you are 25...

    i would certainly have more courage to be open about myself with the outside community if the asd world didnt reflect so much that we are in some way past it.

     

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  • perhaps lack of understanding in the larger world would be easier to bear if there was a stronger support base for adults in the world of support for autism...one only has to look through any asd related journal including "communication" to see that almost all support advertising is directed at young people...schools,respite,colleges ,residential etc..its really like you fall off the radar at 25..

    imagine looking in these same mags and seeing regional resourse centres,social centres,dropin centres,supported work environments,respite care centres for people with HFA\aspergers...for those of us who cannot function independantly but are not deemed to be learning disabled..or dont have severely challenging behaviour.in my area there is no where to go at all after you are 25...

    i would certainly have more courage to be open about myself with the outside community if the asd world didnt reflect so much that we are in some way past it.

     

Children
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