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Fear of and Necessity for Labels

Jim V - mod

AndrewC posted this discussion in the guide, before I realised my mistake in how they were written. So I'm just creating this on his behalf so people can respond to the message.

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I know a number of people are put of going for early diagnosis because they fear labelling their child or are not themselves emotionally ready for that label.

Unfortunately, labels can also be necessary/hugely beneficial in accessing the right support services for your child, particularly re education.

 

Perhaps this would be a good thread for people to share what their concerns were/are about going for diagnosis, and whether obtaining a diagnosis has been positive or negative overall?

Parents

  • I was very concerned about labelling when I was in the process of getting a diagnosis for my son, but three years later, I have found it to be a huge advantage. 

    Not only has it helped my child gain a place at a school equipped to cater for his needs  and access to specialist autism services, it has given me an understanding of his difficulties, and the knowledge I am not to blame.

    People do learn to cope over time and a lot of that can be helped with support and understanding of family, friends and professionals (whose services often only become available after diagnosis) 

    As Pavlova points out anyone who is different is labelled anyway. Surely it is better to be given a label that has the potential to provide help and understanding.

Reply

  • I was very concerned about labelling when I was in the process of getting a diagnosis for my son, but three years later, I have found it to be a huge advantage. 

    Not only has it helped my child gain a place at a school equipped to cater for his needs  and access to specialist autism services, it has given me an understanding of his difficulties, and the knowledge I am not to blame.

    People do learn to cope over time and a lot of that can be helped with support and understanding of family, friends and professionals (whose services often only become available after diagnosis) 

    As Pavlova points out anyone who is different is labelled anyway. Surely it is better to be given a label that has the potential to provide help and understanding.

Children
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