Lifelong cracking joints, aching and stiffness... could this have something to do with being autistic?

Hello everyone.

I have over-pronounced [flat] feet which I understand is common within the autistic community. I have had these my whole life. I went for regular physiotherapy as a child but this treatment started to phase out during my adolescence. I only learned about its association with autism after my diagnosis a few years ago when researching the community. So this got me thinking about other lifelong ‘physical’ issues of mine. In this case, the cracking joints, aching and stiffness that I have experienced for as long as I can remember. I have always struggled with sports because of it, as well as daily tasks. Whilst it has not stopped me from having a go, I often feel that my performance is not all that it could be which can be disappointing. I have always found stairs painful and feel older than my years [I am currently in my twenties]. Now that I am a member of this forum, I wanted to take the opportunity to see if there is anyone else on here with similar problems. It could be that I am entitled to support that I am not getting at the moment because I have not explored it enough. If so, what is the name of the condition and should I see my general physician about it for an official diagnosis?

Something else to note: During my adolescence, I visited my general physician for a blood test as I thought it might be a calcium issue. I thought this because I stopped drinking milk from about age ten because I did not like the texture. I have always liked other diary products such as yogurt and cheese though, which I hoped would make up for the absence of plain milk. At the time, my results showed that my levels were normal. Yogurt and cheese have remained a staple part of my diet ever since; so I hope my levels are still normal [ten years on] and therefore not relevant in this post. But still, I thought it was worth mentioning regardless.

Thank you.

Parents
  • Hyper mobility is another condition that commonly co occurs with Autism. I’m hyper mobile and I have had cracking knees since I was little. I also started getting pain in my right knee and hip joint a couple of years ago but luckily losing weight has resolved this issue. I wonder if this might possibly be part of what is causing your cracking joints and pain. Do you do the W sit? I only ask as it’s extremely common in hyper mobile people.

  • Thank you for your response! I am not aware of hypermobility. Google defines it as ‘a condition that features joints that easily move beyond the normal range expected for that particular joint’. This does not sound like me. I am actually the opposite. Everything feels stiff and clunky; often lacking grace and skill in my movement and posture. As I mentioned in my post, I have always struggled with sports and daily tasks such as climbing stairs and feel older than my years. I am height and weight proportionate and have never ‘W’ sat in my life.

  • Ok. Well that appears to rule out hyper mobility then. Have you thought of asking your GP to refer you for tests to try to determine the cause?

  • Yes, that is sort of what my post is about. But before I start to bother my general physician, I just wanted to make sure that I did some homework first. As I mentioned in my post, I visited my general physician when I was a teenager for a blood test - suspecting that it could be a calcium issue - but my results actually came back normal, so I dismissed the issue thereafter. I have been diagnosed with autism since this time though - shining a whole new light on my life - and therefore making me wonder if my joint issue could be connected to that instead. I am curious to know if anyone else on this forum is experiencing a similar issue, or knows about such an issue and whether it is an autistic thing or not.

Reply
  • Yes, that is sort of what my post is about. But before I start to bother my general physician, I just wanted to make sure that I did some homework first. As I mentioned in my post, I visited my general physician when I was a teenager for a blood test - suspecting that it could be a calcium issue - but my results actually came back normal, so I dismissed the issue thereafter. I have been diagnosed with autism since this time though - shining a whole new light on my life - and therefore making me wonder if my joint issue could be connected to that instead. I am curious to know if anyone else on this forum is experiencing a similar issue, or knows about such an issue and whether it is an autistic thing or not.

Children
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