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Help and Advice needed please

Dawn

Hi, oh where to start ! Well my son is now 13 and was diagnosed with ADHD at about the age of seven, that being after i spent 4-5yrs fighting my GP to actually get a referral (incidently still waiting for that, had to take a diversion). Tom has been seing a phyciatrist ever since and currently takes Concerta xl and as thought was plodding along nicely. So to cut a long story short we went on tuesday for our 3 monthly appointment. The Dr told me that she has been seing Tom for a long time now and wasnt going to say anything as she didnt want him to have another "label" to deal with (he was also born with a hand deformity) anyway it seems she thinks he also has ASD and asked if i wanted her to begin getting a diagnosis. YES ! I had never heard of this before so came home and read up on it and to be honest deep down i know that its a case of WHEN and not If we get the results ! He is the same little boy i know and love so why do i feel like my whole world has caved in !! Im worried about what the future holds for him now ? Any advice would be good right now ! Thanks.

  • Hi, Thanks for your kind words, I feel a little more positive today (tomorrow is another day though at the minute). Strangely i feel angry now with everybody, firstly the Dr for not telling me sooner, the school who i rang to inform to be told by his head of year that he has also noticed the "autistic traits" that Tom displays ! My Mother for not seeming to care ! Mostly with myself for not knowing ! But even as i say all this i also know that Tom is the most resilient kids i know. He is right handed as was born with a deformed right hand it took a long time (adhd didnt help) but he learnt himself to write and do everything lefthanded. After doing this he then managed to catch up with his classmates (he was at one point 2yrs behind them). Finding this site was a bit helpfull too i think just knowing that your not alone helps a lot. x

  • It is so hard, but remember that a diagnosis is simply a name for an existing condition... Giving it a name actually gives you a bit of power because it gives you something to work with, read up on and act upon.  Easy for me to say now, because my boy's diagnosis came 3.5 years ago, at the age of 2.5.  It will rock your world - impossible not to when you find that your child has something forever.  No one can tell you what the future holds but know that your son is, and will remain, a fantastic, resilient child who will continue to make you proud.  Keep strong x