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CAMHS & SCHOOL FRUSTRATION.

HappyDays

Hi all,  Daughter 14 is currently under assesment for ASC. I Have other children already diagnosd but they were diagnosed much earlier as it has been much more obvious with them. We have been waiting for what seems like forever for some help from CAHMS. My daughter is incredibly unhappy at the moment, her self asteem is at absolute rock bottom and  shes finding the school environment difficult. Its absolutley heartbreaking. She says shes a freak, and a bad person, and that nobody likes her and we have had a bout of self harming. Shes refusing to participate in school and gets incredibly frustrated. School pretty rubbish just keep complaining about her behaviour yet not put anything in place to help her cope any better even though i have explained the family history of ASC seem to need a diagnosis to want to help. 

CAHMS messed up and cancelled last 2 appointments even though we waited forever for them . Yet again just phoned to cancel another appiontment. She already feels that no one really gives a damn, how on earth do i explain they cancelled on her again. I feel so useless, i cant seem to make her feel any better. she is such a beautifull intelligent young lady and a really good person. Anyone else gone through this, any suggestions and any advice is welcome.

Parents

  • Wow! This sounds like my 12 year old son. We are fairly sure, as are the teaching staff and SENCOs who have worked with him, that he has Asperger syndrome. He was, however, assessed and discharged from CAMHS aged 6. Things seemed to have hit rock bottom recently and, after getting sick and tired of having CAMHS repeatedly refuse to reassess him, I wrote to my MP to express my feelings and (sure enough) they've now made him a priority case! I'd highly recommend writing to your MP to give them a nudge. 

    With regards to her education, have the school brought in an Educational Psychologist? Have they drawn up an IEP? These should be the first things I'd expect them to do! Have you considered getting a Statement of SEN? Forgive me if she already has one - you didn't mention it, so I assumed not. If so, that might be something to consider - my son's first primary school, who ended up excluding him, laughed me out of the office when I enquired about it but I ignored them and went to the local authority and applied myself. I was successful in obtaining one for him. 

    I can fully sympathise with you because I'm in precisely the same position - in fact, my son isn't currently attending school at all, having being recently excluded from high school due to his "behaviour" - I've chosen to homeschool him until he has a proper diagnosis and I can find a school that really is geared up to meet his individual needs.

    I hope you get the help and support you need.

     

Reply

  • Wow! This sounds like my 12 year old son. We are fairly sure, as are the teaching staff and SENCOs who have worked with him, that he has Asperger syndrome. He was, however, assessed and discharged from CAMHS aged 6. Things seemed to have hit rock bottom recently and, after getting sick and tired of having CAMHS repeatedly refuse to reassess him, I wrote to my MP to express my feelings and (sure enough) they've now made him a priority case! I'd highly recommend writing to your MP to give them a nudge. 

    With regards to her education, have the school brought in an Educational Psychologist? Have they drawn up an IEP? These should be the first things I'd expect them to do! Have you considered getting a Statement of SEN? Forgive me if she already has one - you didn't mention it, so I assumed not. If so, that might be something to consider - my son's first primary school, who ended up excluding him, laughed me out of the office when I enquired about it but I ignored them and went to the local authority and applied myself. I was successful in obtaining one for him. 

    I can fully sympathise with you because I'm in precisely the same position - in fact, my son isn't currently attending school at all, having being recently excluded from high school due to his "behaviour" - I've chosen to homeschool him until he has a proper diagnosis and I can find a school that really is geared up to meet his individual needs.

    I hope you get the help and support you need.

     

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