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CAMHS & SCHOOL FRUSTRATION.

HappyDays

Hi all,  Daughter 14 is currently under assesment for ASC. I Have other children already diagnosd but they were diagnosed much earlier as it has been much more obvious with them. We have been waiting for what seems like forever for some help from CAHMS. My daughter is incredibly unhappy at the moment, her self asteem is at absolute rock bottom and  shes finding the school environment difficult. Its absolutley heartbreaking. She says shes a freak, and a bad person, and that nobody likes her and we have had a bout of self harming. Shes refusing to participate in school and gets incredibly frustrated. School pretty rubbish just keep complaining about her behaviour yet not put anything in place to help her cope any better even though i have explained the family history of ASC seem to need a diagnosis to want to help. 

CAHMS messed up and cancelled last 2 appointments even though we waited forever for them . Yet again just phoned to cancel another appiontment. She already feels that no one really gives a damn, how on earth do i explain they cancelled on her again. I feel so useless, i cant seem to make her feel any better. she is such a beautifull intelligent young lady and a really good person. Anyone else gone through this, any suggestions and any advice is welcome.

Parents

  • Dear HappyDays,

    How rotten for you.  I think it is time to get tough with the CAMHS people.  Put on your thickest skin, phone them and ask for the details of the Head of Department.  Are they attached to the council?  (I can't remember).  If so, get the name of the most senior person you can - even the head of the council or your MP.  Write to them all explaining that 3 cancellations is unacceptable and that this is hurting your daughter.  Someone needs to take responsibility for her and stop mucking you both around.  Tell them that you want the first call if someone cancels their appointment.  I remember being told that it was a 9 month wait for the Paed, just to get confirmation of ASD for my son's statement.  It would have delayed his school start by 6 months!  I was polite but firm, told them that it was unacceptable and hey presto, an apt within 6 wks.  I am sure you have done everythings else you can, it is a nightmare, I think you have got to the stage where you have to start scaring people a bit.  Most professionals do not expect to be challenged as the majority of parents are so loaded down with all they have to deal with the last thing they can take on is another fight.  The good thing is that senior people absolutely HAVE to be seen to respond......

    Best of luck with this - it is horrendous that you and your daughter have been treated so badly.  Be scary.... x

Reply

  • Dear HappyDays,

    How rotten for you.  I think it is time to get tough with the CAMHS people.  Put on your thickest skin, phone them and ask for the details of the Head of Department.  Are they attached to the council?  (I can't remember).  If so, get the name of the most senior person you can - even the head of the council or your MP.  Write to them all explaining that 3 cancellations is unacceptable and that this is hurting your daughter.  Someone needs to take responsibility for her and stop mucking you both around.  Tell them that you want the first call if someone cancels their appointment.  I remember being told that it was a 9 month wait for the Paed, just to get confirmation of ASD for my son's statement.  It would have delayed his school start by 6 months!  I was polite but firm, told them that it was unacceptable and hey presto, an apt within 6 wks.  I am sure you have done everythings else you can, it is a nightmare, I think you have got to the stage where you have to start scaring people a bit.  Most professionals do not expect to be challenged as the majority of parents are so loaded down with all they have to deal with the last thing they can take on is another fight.  The good thing is that senior people absolutely HAVE to be seen to respond......

    Best of luck with this - it is horrendous that you and your daughter have been treated so badly.  Be scary.... x

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