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Feeling alone

Bscburgess

My 5 yr old son was diagnosed with ASD three weeks ago. I came back from appointment and went to discuss with my partner who went off on a tangent that all I was after was getting our son 'labelled'. I told him to stop right there and when he was ready to ave a discussion with me about it, to come back to me. As yet we have still not spoken about he so he still does not know what the consultant said. He thinks that it now means our boy is special needs, needs to go to special school and has changed over night. My son is still the boy he was before diagnosis. It was not about getting him labelled but to be able to know what was wrong to be able to understand what we could do to bring out his full potential. At the moment I feel so alone as I dont know anyone in a similar situation. I have told my mum the outcome and have also spoke to a close work colleague but still feel alone as I dont feel I can raise the subject with my partner. Am looking to make friends with those that understand it all.

Parents

  • It is possibly worth considering whether there is any previous pattern of even very mild ASD in the family. A partner may be reacting to his/her own self-doubts about having had similar symptoms or about a close relative showing signs. In the past people tended to "bury" such problems as the consequences of it becoming known that social services were intervening attracted stigma. This "folk memory" if I could call it that might make people more reserved about these things today, even though taking action to get support is now the right approach.

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  • It is possibly worth considering whether there is any previous pattern of even very mild ASD in the family. A partner may be reacting to his/her own self-doubts about having had similar symptoms or about a close relative showing signs. In the past people tended to "bury" such problems as the consequences of it becoming known that social services were intervening attracted stigma. This "folk memory" if I could call it that might make people more reserved about these things today, even though taking action to get support is now the right approach.

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