Feeling alone

My 5 yr old son was diagnosed with ASD three weeks ago. I came back from appointment and went to discuss with my partner who went off on a tangent that all I was after was getting our son 'labelled'. I told him to stop right there and when he was ready to ave a discussion with me about it, to come back to me. As yet we have still not spoken about he so he still does not know what the consultant said. He thinks that it now means our boy is special needs, needs to go to special school and has changed over night. My son is still the boy he was before diagnosis. It was not about getting him labelled but to be able to know what was wrong to be able to understand what we could do to bring out his full potential. At the moment I feel so alone as I dont know anyone in a similar situation. I have told my mum the outcome and have also spoke to a close work colleague but still feel alone as I dont feel I can raise the subject with my partner. Am looking to make friends with those that understand it all.

Parents
  • Hi! Bscburgess

    i newly joined forum and happened to come across your comment. I have exactly the same situation. My son's dad can't understand what having ASD means to my son, my hus just thinks it is his shyness and "he is shy, so what?". All his aggresive behaviours (due to meltdown) is because of my poor parenting, well that kind of comments really hurt me....as I have been working so hard for him... my hus was also outraged when he found out I was going to claim DLA. My hus told me DLA is disgreceful, using my son't diagnose for money.  My hus believes that my son can eaily survive without any special arrangement, such as selecting school etc and he is indifferent for our son's future. Yes, Bscburgess, I do feel very alone and isolated, too. You are def not alone. 

Reply
  • Hi! Bscburgess

    i newly joined forum and happened to come across your comment. I have exactly the same situation. My son's dad can't understand what having ASD means to my son, my hus just thinks it is his shyness and "he is shy, so what?". All his aggresive behaviours (due to meltdown) is because of my poor parenting, well that kind of comments really hurt me....as I have been working so hard for him... my hus was also outraged when he found out I was going to claim DLA. My hus told me DLA is disgreceful, using my son't diagnose for money.  My hus believes that my son can eaily survive without any special arrangement, such as selecting school etc and he is indifferent for our son's future. Yes, Bscburgess, I do feel very alone and isolated, too. You are def not alone. 

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