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Feeling alone

Bscburgess

My 5 yr old son was diagnosed with ASD three weeks ago. I came back from appointment and went to discuss with my partner who went off on a tangent that all I was after was getting our son 'labelled'. I told him to stop right there and when he was ready to ave a discussion with me about it, to come back to me. As yet we have still not spoken about he so he still does not know what the consultant said. He thinks that it now means our boy is special needs, needs to go to special school and has changed over night. My son is still the boy he was before diagnosis. It was not about getting him labelled but to be able to know what was wrong to be able to understand what we could do to bring out his full potential. At the moment I feel so alone as I dont know anyone in a similar situation. I have told my mum the outcome and have also spoke to a close work colleague but still feel alone as I dont feel I can raise the subject with my partner. Am looking to make friends with those that understand it all.

Parents

  • Hi Bscburgess

    You are def not alone, even if you just have a look through some of the posts on here you will see other people feeling the same way. 

    My son hasn't actually been diagnosed yet, but we are waiting for him to be reviewed but I have had very similar responses to you. My husband was a bit more willing to talk about it as he came to the appointments with me, but not necessarily believing what we have been told. My mother-in-law also told me that if I keep taking him to his interventions and to see doctors that he will think there is something wrong with him. 

    As everyone else has said everyone deals with things differently. You are doing what is right for your son and he will now start getting all the support that he needs and you can start to understand a bit better what is happening. If you feel like a chat about anything put it on here. It definitely helps to know that other people are having the same things happen. 

    It might be worth asking at your son's school if any other parents there have a similar diagnosis and may like to be put in touch with other parents. I've recently met a mum at my son's school and it is so good to talk. 

    Good luck

    Vic x

     

     

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  • Hi Bscburgess

    You are def not alone, even if you just have a look through some of the posts on here you will see other people feeling the same way. 

    My son hasn't actually been diagnosed yet, but we are waiting for him to be reviewed but I have had very similar responses to you. My husband was a bit more willing to talk about it as he came to the appointments with me, but not necessarily believing what we have been told. My mother-in-law also told me that if I keep taking him to his interventions and to see doctors that he will think there is something wrong with him. 

    As everyone else has said everyone deals with things differently. You are doing what is right for your son and he will now start getting all the support that he needs and you can start to understand a bit better what is happening. If you feel like a chat about anything put it on here. It definitely helps to know that other people are having the same things happen. 

    It might be worth asking at your son's school if any other parents there have a similar diagnosis and may like to be put in touch with other parents. I've recently met a mum at my son's school and it is so good to talk. 

    Good luck

    Vic x

     

     

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