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Early days in assesment

littlewren

I posted a few weeks back regarding the issues my son has and over the last week he has begun the journey to diagnosis. We are getting some conflicting views from the Dr and Hv - the hv says because he is affectionate and spoke to her at the meeting it isnt autism but probably a behavoural issue that needs addressing. My Dr agreed that he could be very intelligent and manipulative with anxiety issues but did display some autistic symptoms. I had always felt they should be looking at mild aspergers and OCD but I guess we wont know until he is assessed. 

I have a couple questions which I hope you can help with. I totally understand that the initial referal appointment can take some time is there an average wait time? Also the Dr mentioned that the whole family would most likely need to be present for some of his assessment which includes my 7yr old daughter. I am wondering what would be the best way to explain this to her? I dont want her worrying and its hard to explain to adults what my son 'might' have let alone a child. 

Any advice is always appreciated. x

Parents

  • Start quoting the NHS NICE guidelines at them and tell them they are in contravention of them:

    guidance.nice.org.uk/CG128

    I believe your rights in the NHS charter are: "If your GP refers you for treatment, you have the right for any non-emergency treatment that you need to start within a maximum of 18 weeks or for the NHS to take all reasonable steps to offer you a range of alternatives if this is not possible. You also have the right to be seen by a specialist within a maximum of two weeks from GP referral for urgent referrals where cancer is suspected.  For more information visit the section on waiting times on the NHS Choices website."

    Also see this: www.adviceguide.org.uk/.../nhs_patients_rights.htm

    Start complaining in writing, phone them to hassle them, start making a pain of yourself to get things moving.  Otherwise they will continue to treat you like that.

    Ignore people, nursery or otherwise who question your parenting, you know your child the best.

Reply

  • Start quoting the NHS NICE guidelines at them and tell them they are in contravention of them:

    guidance.nice.org.uk/CG128

    I believe your rights in the NHS charter are: "If your GP refers you for treatment, you have the right for any non-emergency treatment that you need to start within a maximum of 18 weeks or for the NHS to take all reasonable steps to offer you a range of alternatives if this is not possible. You also have the right to be seen by a specialist within a maximum of two weeks from GP referral for urgent referrals where cancer is suspected.  For more information visit the section on waiting times on the NHS Choices website."

    Also see this: www.adviceguide.org.uk/.../nhs_patients_rights.htm

    Start complaining in writing, phone them to hassle them, start making a pain of yourself to get things moving.  Otherwise they will continue to treat you like that.

    Ignore people, nursery or otherwise who question your parenting, you know your child the best.

Children
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