Early days in assesment

I posted a few weeks back regarding the issues my son has and over the last week he has begun the journey to diagnosis. We are getting some conflicting views from the Dr and Hv - the hv says because he is affectionate and spoke to her at the meeting it isnt autism but probably a behavoural issue that needs addressing. My Dr agreed that he could be very intelligent and manipulative with anxiety issues but did display some autistic symptoms. I had always felt they should be looking at mild aspergers and OCD but I guess we wont know until he is assessed. 

I have a couple questions which I hope you can help with. I totally understand that the initial referal appointment can take some time is there an average wait time? Also the Dr mentioned that the whole family would most likely need to be present for some of his assessment which includes my 7yr old daughter. I am wondering what would be the best way to explain this to her? I dont want her worrying and its hard to explain to adults what my son 'might' have let alone a child. 

Any advice is always appreciated. x

Parents
  • Thank you so much for your replies, sorry it taken a while to respond but I appreciate the information.

    Things are getting worse here for us. His behaviour has taken a down turn and we seem to be fighting an uphill battle to get him seen. He was referred back in November but the referall was passed on and rejected waiting for a report from the nursery. No report was requested and it the letter was sent out again. This letter never arrived and now after more chasing it seems he should have been referred to the original hospital.

    The nursery are very good but they seem to think that I need parenting classes rather than there being anything wrong with him. They are trying to help me potty train him (hes 4 in May) but he mostly refuses to do this. Yesterday he sat in the toilet for 30mins refusing to come out, so they are getting glimpses of the problems I face with daily. I cant even take my daughter to school now as he screams and fights me the whole way, punching me and running off.

    Its so draining isnt it, I just need some answers/help either way. Frown

    I should add the hv did the standard test they give to children displaying autistic/aspergers traits and he scored 120 when I think if remember back the normal result should be below 30? So im getting conflicting reports from the nursery and what I experience at home.

Reply
  • Thank you so much for your replies, sorry it taken a while to respond but I appreciate the information.

    Things are getting worse here for us. His behaviour has taken a down turn and we seem to be fighting an uphill battle to get him seen. He was referred back in November but the referall was passed on and rejected waiting for a report from the nursery. No report was requested and it the letter was sent out again. This letter never arrived and now after more chasing it seems he should have been referred to the original hospital.

    The nursery are very good but they seem to think that I need parenting classes rather than there being anything wrong with him. They are trying to help me potty train him (hes 4 in May) but he mostly refuses to do this. Yesterday he sat in the toilet for 30mins refusing to come out, so they are getting glimpses of the problems I face with daily. I cant even take my daughter to school now as he screams and fights me the whole way, punching me and running off.

    Its so draining isnt it, I just need some answers/help either way. Frown

    I should add the hv did the standard test they give to children displaying autistic/aspergers traits and he scored 120 when I think if remember back the normal result should be below 30? So im getting conflicting reports from the nursery and what I experience at home.

Children
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