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Fighting a loosing bettle help pls

mum of 4 boys

Hi I was so relieved when my son was diagnosed with autism and adhd, considering when he was 18months old I asked my health visitor if he was autistic. It has  been a very very long road to diagnosis.

His psychiatrist diagnosed him then refered him to tier 2 cahms, he has recieved no help from anyone but the school since diagnoses. One night he was having a very major meltdown and he was swearing badly at me whilst crying and I think it was tears because he didn't want to be saying these things to me but couldn't control himself. He then started talking about self harm and comiting suicide, I was beside myself with worry and didn't quite know where to turn, I opted to call social care and ask them for help for him, I explained everything to her and whe said.... Oh it sounds awful poor you, anyway its half past 5 and there is nobody in the office I will pass on the message tomorrow. I couldn't believe my ears, she gave me no advice and didn't suggest who to contact. I called the police, the doctors and others I could think of, by that time he had worked himself up into such a frenzy he was exhausted and fell asleep. I spoke to Bucks carers the next day who called social care for me and also his psychiatrist, who informed her that he was refered to tier 2 cams rather than tier 3 because he showed no signs of his autism effecting his mental health. Now I have told her about his suicidal thoughts and his anger and his meltdown and the fact that the following day after a meltdown he suffers with terrible stomache aches and headaches ect. Could you pass on your oppinions as to whether I should be pushing for him to be placed in teir 3 and actually recieve help or was she right to put him in tier 2, and what is the difference between the two. I feel like I am fighting a loosing battle and any and all advice would be very much appreciated xx ty

Parents

  • Do you have a local autistic society? - mine helped me do the form and we got low level mobility and mid level care. Its work taking the time do do it. If you requested a paper form they backdate any award to the date they sent you the form. I don't think it works that way if you are doing it online.

    We keep the DLA money separate from everything else so it is there to put things right when they go wrong.  I could write a very long list of things that it has pad for. The mobility element goes towards the running costs of his car which he needs to get to college - its like his own little bubble and makes it so much easier for him.

     I've given up with NTs understanding - and to some extent my son has too. We just find ways to make it work for him and s*d everyone else. Unless you walk in our shoes you won't see it how we do.

    I would say yes approach the housing association . My son would not cope with out a room of his own to live in. It gives him calming down space and get away from it all space. Siblings deserve a break too - they have a rough ride and as amum that's really hard to see, when you know you can't do annything about it

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  • Do you have a local autistic society? - mine helped me do the form and we got low level mobility and mid level care. Its work taking the time do do it. If you requested a paper form they backdate any award to the date they sent you the form. I don't think it works that way if you are doing it online.

    We keep the DLA money separate from everything else so it is there to put things right when they go wrong.  I could write a very long list of things that it has pad for. The mobility element goes towards the running costs of his car which he needs to get to college - its like his own little bubble and makes it so much easier for him.

     I've given up with NTs understanding - and to some extent my son has too. We just find ways to make it work for him and s*d everyone else. Unless you walk in our shoes you won't see it how we do.

    I would say yes approach the housing association . My son would not cope with out a room of his own to live in. It gives him calming down space and get away from it all space. Siblings deserve a break too - they have a rough ride and as amum that's really hard to see, when you know you can't do annything about it

Children
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