Is this autism or something else?

Hi there!

please excuse what is probably a topic already done to death by many other people here but my middle son, Jake, is currently under investigation for possible ASD and has been for the last year. He is 3 with the following things which were flagged by specialists at various stages:

  • little language (he has echolalia - both immediate and delayed)
  • very aggressive
  • obsessive behaviour
  • cannot play with others
  • cannot play with toys
  • spends most of his time looking at things very closely
  • throws stuff
  • screams a lot
  • cannot follow instructions at times
  • does not understand most of what is said to him
  • shows no interest in others
  • obsessed with motion such as vehicles, water pouring, sand timers etc
  • reacts violently to controlled environments where he is not in charge
  • eats very little - incredibly particular about foods and if they touch each other
  • can only express wants/needs - does not engage in two-way conversation ever
  • cannot count or respond to questions
  • does not recognise his own name at times
  • cannot distunguish people in photos
  • cannot distinguish between people with similar hair e.g. every blonde girl is "elle", his sister's friend and everyone with dark hair is his sister
  • has to do things in a particular order and gets very upset and violent if this does not happen
  • will tolerate the dentist but not doctors, nurses, hair dressers or having his shoes fitted
  • has no concept of safety - either his own or other people's
  • does not interpret emotions in others
  • harms self regularly

That list is not exhaustive but I figured it was long enough to start with. We've been to all different kinds of people (most of which say they don't know what to do or how to help him as he's so uncooperative) and I'm waiting on the local psychology team to meet him later this month and hopefully make some suggestions as to what, if anything, is wrong with him. Does this sound like ASD or something else entirely?

I don't know - no one is really saying anything definite but they keep throwing autism out there as the only option they are considering. I've got no problem with a diagnosis being made, it's more what if there is nothing wrong with him and I'm stuck with a lovely but very limited little boy who may not improve ever. Either that or I've dropped the ball completely with him and I'm a terrible parent... Cry

Parents
  • Hi Pigeonjumper,

    Sorry to hear you feel you are dealing with all this on your own. Given the number of people involved with your boy as well as the issues you are dealing with I am not surprised you feel in need of of a moan! You have certainly not dropped the ball with him – you have got him (and you) well on the way to getting the help you need. I don't have much advice, my dd is not diagnosed, just want to lend and 'ear' and say good luck with the assessments. I am not sure the struggle and the stress ever ends, but a thorough assessment is a start, to reveal the issues and move forward. I suspect it will also help to get your OH on board so you can get a bit of support and feel a bit more of a team? Let us know how you get on. You are doing the right thing, keep going and keep us posted.

    Handywomanxxxxxx 

Reply
  • Hi Pigeonjumper,

    Sorry to hear you feel you are dealing with all this on your own. Given the number of people involved with your boy as well as the issues you are dealing with I am not surprised you feel in need of of a moan! You have certainly not dropped the ball with him – you have got him (and you) well on the way to getting the help you need. I don't have much advice, my dd is not diagnosed, just want to lend and 'ear' and say good luck with the assessments. I am not sure the struggle and the stress ever ends, but a thorough assessment is a start, to reveal the issues and move forward. I suspect it will also help to get your OH on board so you can get a bit of support and feel a bit more of a team? Let us know how you get on. You are doing the right thing, keep going and keep us posted.

    Handywomanxxxxxx 

Children
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