Diagnosis postponed AGAIN!

Hi everyone,

 

I was hoping i could find some wisdom and patience with the current DX process for my DD aged 9.....

 

My DS was seen as presented "abnormally" (not my words) from aged 3. After many tests he was DX as high functioning autism from the age of 4. he went to mainstream school up to the age of 7 and is now in a special unit of a mainstream school  15 miles away from home.

My DD currently aged 9 has been acting strangely (if you can call it that) from the age of 4, flapping, humming and being far below her peers from the start of school.

 

For 4 years now despite her behaviour and obvious motor skill imparment we have been told that she was "copying" her brother.....even though her tics and quirks are so different from my DS's.

 

Last June the behavioural psycologist referrered her finally for an assessment....14 months after the referal at our 2nd reappointment tomorrow we get a phone call that the psycharistrist is off sick AGAIN.....we have been preparing her for this for several weeks from the end of January.....she is distraught as the word aspergers was banded about at her initial referal last JUNE.  She just wants to know what is wrong with her.

 

I understand that people get ill..but this is the 3rd put off since the end of January....is it ok to get a bit annoyed now?  why is it i feel like they are fobbing my DD off?

 

Any experience/advice whould be greatly apprectiated

 

Franks Mum

Parents
  • Thank you for your advice.

     

    I ended up ringing the complaints departmet of the PCT and explaining the distress my DD had been put through (after a week of waiting for a new appointment and nothing forthcoming from CAMHS).

     

    My DD was seen on Wednesday and her dx is now a matter of "urgency" (the psychairatrists word not mine) and we should have a DX within a month.

    Fingers crossed for the right outcome!

    Franks Mum

Reply
  • Thank you for your advice.

     

    I ended up ringing the complaints departmet of the PCT and explaining the distress my DD had been put through (after a week of waiting for a new appointment and nothing forthcoming from CAMHS).

     

    My DD was seen on Wednesday and her dx is now a matter of "urgency" (the psychairatrists word not mine) and we should have a DX within a month.

    Fingers crossed for the right outcome!

    Franks Mum

Children
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