My marriage with a man with ASD is currently under significant strain. The diagnosis is recent and I have a lot to learn about supporting him and our family in this light, and about my own self care. We have a 1 year old and 3 year old, and this is a major area of strain as my husband gets very stressed by the chaos involved with 2 very young kids -- I know this is common. I would welcome any coping strategies for getting through weekends. We've been each taking one child and doing things separately as this helps my husband's stress, but we both feel we are growing apart as a result of spending little time together. I guess having a highly structured weekend with some routines might help. He gets very anxious about car journeys with the kids due I think to the unpredictability of whether they will cry/shout/get hungry/ need the loo etc.
We've also been through a prolonged trauma as our youngest was born with a life threatening birth defect, had major surgery and spent a long time in intensive care. She's doing better now, but it has caused extra strain and stress and my husband is suffering hyper vigilance too, which I recognise is really hard for him. He says he doesn't want therapy. He also has a demanding job. Overall his stress levels are such that at home he is in very withdrawn states most of the time, in which he speaks little and seems quite angry. He often attributes these moods to something I've done, but it will be something small (an impatient remark), and this state of mind will last all day. If I look at the bigger picture I'm sure his overall stress is a factor. I would really welcome strategies on how to respond when he is in a withdrawn, angry state. It doesn't seem he wants to be left alone as then he feels I am avoiding him, and finds that hurtful.
He tends not to accept his diagnosis, and he questions the validity of diagnoses/labels in general. I respect that this is a position, but it makes me feel very alone in how to best manage things for the family. Also, it means, for example, that he doesn't want to see a relationship counsellor with ASD experience, which is what I would find helpful.
Sorry for a long post. I'd be really grateful for advice relating to any part of these difficulties. If things remain this hard I'm not sure I can stay in the marriage, but I want to give it my best shot. I do wonder if it will get easier as the children get older -- have others found that?
I am the newly diagnosed ASD wife in a marriage with a NT husband and I know how much strain there can be on a relationship. It is hard enough for us in our late 50s with only our little dog to care for - I really empathise with you. At a similar stage of my life when I was married with two small children things were very difficult indeed.
One practical suggestion I have is to use the Relate Live Chat service if you ever feel you need to let off steam or get quick support: www.relate.org.uk/.../live-chat-counsellorThe psychologist who diagnosed me gave us several suggestions to improve our relationship as a couple:
I am using support from several sources. This forum, NHS IAPT psychology (GP or self referral is available in most areas), Occupational Health, Trade Union advisor.
My husband has hobbies that give him time on his own too. It is very hard when you have children to get any space, I know. There is a parent to parent service provided by NAS where you might be able to get advice and support on coping strategies and relationship issues: www.autism.org.uk/.../parent-to-parent.aspx
It is great that you want to try and make your marriage work if you can. A lot of negative things are written about lack of empathy in autistic people whereas we are often deeply caring and loyal but just show it in different ways. It does get easier as the children get older in my experience. Very best wishes to you.
Thank you so much for this really helpful set of suggestions. I really appreciate you taking the time to share them. Also, I totally agree about the capacity to be very caring and loyal. That is certainly the case with my husband.
All the best.