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Feeling like a burden

Starbuck

Without getting too personal I am having a few health issues that are under investigation, and have involved multiple trips to the hospital and GP. The results are dragging on somewhat though and my health has been uo and down a lot. Today was a bad day where I ended up in hospital, but I always feel like I am wasting everyone's time.

Because I am waiting for results and follow up appointments, no one can help or treat me. I am fed up with being asked so what do you want us to do for you or why have you come in an ambulance when I never called an ambulance or I visit a medical professional on instructions from other medical professionals.

I feel like crap and on top if it I am starting to feel like a hypochondriac. When the NHS become so cold?

At the end of the day I want to be well and get on with my life as I hate hospitals and medical facilities.

Parents

  • Sorry to hear how you are feeling. The health system is incredibly complicated now - we need a properly integrated, person-centred service where clinicians have expertise and skills relating to health and autism.

    In the hope of making you feel better, I have had the following interventions over the last 2 weeks for an ankle problem:

    2 telephone calls to the 111 service (out of hours)

    2 visits to the urgent care centre (initially for assessment, then for X-rays) 

    3 appointments with GPs

    2 telephone consultations with Nurse Practitioners  

    2 referrals for physiotherapy (self referral followed by GP referral) 

    1 appointment with a Nurse Practitioner  

    1 appointment with a physiotherapist 

    3 different diagnoses (they got it right third time!) 

    I dread to think what all this has cost the NHS. Much earlier diagnosis by someone capable of assessing my condition properly would have been so much more cost effective and far less stressful for me! 

    Do not feel bad, it's the way the system works that's the problem, not you! 

Reply

  • Sorry to hear how you are feeling. The health system is incredibly complicated now - we need a properly integrated, person-centred service where clinicians have expertise and skills relating to health and autism.

    In the hope of making you feel better, I have had the following interventions over the last 2 weeks for an ankle problem:

    2 telephone calls to the 111 service (out of hours)

    2 visits to the urgent care centre (initially for assessment, then for X-rays) 

    3 appointments with GPs

    2 telephone consultations with Nurse Practitioners  

    2 referrals for physiotherapy (self referral followed by GP referral) 

    1 appointment with a Nurse Practitioner  

    1 appointment with a physiotherapist 

    3 different diagnoses (they got it right third time!) 

    I dread to think what all this has cost the NHS. Much earlier diagnosis by someone capable of assessing my condition properly would have been so much more cost effective and far less stressful for me! 

    Do not feel bad, it's the way the system works that's the problem, not you! 

Children
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