As the title says, I have technically been barred from accessing health care. I had a meltdown over the holiday weekend because I returned home after a rare day out and my neighbour started playing loud music. The out of hours GP asked social workers to visit me at home and eventually they agreed. BUT they arrived at my house before I'd left the doctors office. I then went all week feeling anxious and I could feel a meltdown coming so I made an appointment with my GP. Unfortunately she spoke loudly didn't listen interrupted..and I had a meltdown in front of her. I hit myself in the head about 5-10 times in 5-10 seconds and it was over with. I was told my behavior was worse than her 2 young kids and I left with no help. A letter arrived from the surgery manager saying....
Last year my very new neighbour raved for 12 hours every Saturday and every Sunday for 2 months. This caused so much anxiety I had to sleep on my only friends sofa for 2 months. This is all after previous neighbour issues and a lot of moving around/change. Being from Oxfordshire means there are few to zero professionals with qualifications experience and knowledge of autism...and I get no support from anyone when its needed. The person that wrote autism guidance for NHS england wasted their time because in my experience NHS Oxfordshire have no idea about autism challenging behavior and the triggers that might cause anxiety. And they have none of the great and helpful services written about by NHS England. And the local council staff are beyond clueless. And this leaves me and a lot of people with health and social care problems.
I have some support from one friend on a Saturday so because of the weekend ban imposed by the doctors I am now unable to access health care. How can this be legal. In the recent court case NAS helped with it was more or less ruled that an autistic kid can hit his teachers and NOT immediately get excluded from school if the teachers sat doing NOTHING except eat custard creams while the kid complained the environment was going to cause him meltdowns. SOOOO how can essential education be available to autistic kids who engage in challenging uncontrollable behavior but autistic adults can be excluded from essential health care ???? seems wrong to me !!! discrimination or breach of human rights maybe..
That sounds pretty traumatic. I know a bit what it's like: desperately wanting help and being obstructed, and them not even listening, has given me a meltdown in front of a 'therapist'.
From the letter you quote, it sounds more like a warning than being barred, GP practices aren't technically part of the NHS, but run by the GPs. You can still complain to NHS England or to the ombudsman. Even if you were barred from the GP practice, you're not barred from any other in the area, and not from A&E or walk-in clinics. It would be good if the particular GP had some training in autism.
Were you verbally abusive? Maybe what you said was also quite revealing.
The first people I would suggest would be your local Healthwatch who might know if the best thing is to mediate or just concentrate on the main problem,
Muddled1 said:they arrived at my house before I'd left the doctors office
That sounds like social services being too effective... they still haven't done what they were asked though.
You should be able to report the noisy neighbour to your council environmental department directly.
That is horrible. One of my main reasons for getting an official diagnosis was because I felt that I was effectively barring my children from healthcare by being autistic and I thought that being diagnosed may help.
Hi muddled 1, really sorry to hear your story, neighbours can literally drive people like us to leave. I had my fair share of neighbour issues a few years ago, an awful lot of young boys and girls all grew up feral, always outside but never playing, throwing rocks at each other, litter everywhere, destroying trees and hedges, and by worse was the incessant football deliberately being kicked against our walls and front door, the parents joined in, the housing association did nothing, the police did nothing as it was easier to shut me up than all of them.
Thankfully they have all grown up and no new hoards to take thier place, so pretty peaceful now.
So you say there is little to no knowledge or understanding in Oxfordshire of autism?
I don’t know the area well but know a few people who live there, they wouldn’t know one way or another, there are still many gp practices that have no training what so ever but must catch up as the government states clearly they should.
Problem is they aren’t governed specifically by councils.
What rough area of oxford are you, north, east, south or west, no address as NAS says not allowed to give personal information out on here.
Is there a possibility you could try a neighbouring area? Some folks on here are cleverer than me and might be able to look up which practices are trained for you. There was a list somewhere somebody put up.
I can’t do fancy links to posts etc.
I hope you get some help as a lot of the main issues are others being inconsiderate to others,
Take care and keep us posted on the outcome if you will.