Diagnosis help & advice please !!!!

Hi ti all you lovely folks Smile

I took the first step towards a diagnosis for my 3 year old son today , we visited our GP! I did not think i would find it so hard to get the words out , i ended up in floods of tears and so upset at what i was saying.

We left the doctors surgery with no advice really , but my little man is being referred to the hospital . 

I would very much appreciate any help or advice !

Thanks kindly ,

a heart broken mummy XXX

  • Just to add to what notpottyyet said about fighting for things. Do not take any rubbish, you know your son better then anyone and you will more then likely come across a number of professionals who are not very helpful (and some who are). Just keep going and don't give up until he has been thouroughly assesed because they will try and fob you off.

    As for advice I'm sure if you post specific questions about anything worrying you then everyone will do their best to help.

    I'm currently going through the diagnosis process with my 7 year old after being diagnosed myself with Asperger's back in May.

  • Hi, it is very natural to be so emotional as we don`t want our children to have a different life to the one we dreamt of. My Sons are both diagnosed with ASC and I will be honest, I did go through a period of greiving as the goalposts had been moved so far apart. I have learnt to just worry about today not too far in the future. He will amaze you, he will acheive milestones for him and celebrate those. Accept life is neve going to be predictable and boring ever again! Having early intervention really does help and fight for everything you want for him because from my experience it is not eagerly offered. Lastly remember that you know him best as you live and breathe it so stick to what you want for him. Put the bad things behind you each day and always try to see the funny side of things in life as that will help you through.

    Wishing you the bestCool

  • julycw said:

    Iam in no way ashamed of my son , he is litttle sweetheart , and i adore him completely! I was ashamed of myself at leaving it so long as i have been increasingly aware of his ow little quirks.

    Actually, I was refering as much to how you feel about yourself as how you feel about your son.

    It's entirely natural for any parent to wish their child to be perfect, and to hope that any difficulties they have are just a phase.

    3 is young age to be diagnosed, and you really could not have done much sooner.

    Being diagnosed so early will hopefully be of great benefit to your son and allow you to get the right support for him throughout his school career.

    I will never view anything to do with my son as a 'bad thing ' ,we are a strong family unit and i would do anything for my kids.

    That is good to hear, and will give him the best chance of doing the best he can in life.

    Iam hoping that a diagnosis will infact help , as floating along as i do at the moment is heart wrenching stuff , my son does noy talk at all , he makes noises and screams , i find this very hard as at times i feel like i must be failing him in his needs , and maybe causing some of the frustration that causes him to lash out.

    I thank you for the kind words , any any advice you may have would be very dear to me.

    I wish I could give you more concrete advice - I was diagnosed with Asperger's late in life (aged about 37), and am not a parent, so getting support for a young child is not an area I have a great deal of knowledge about.

    However there are people on these forums that do, and I'm sure you'll get some good help and advice here.

  • Iam in no way ashamed of my son , he is litttle sweetheart , and i adore him completely! I was ashamed of myself at leaving it so long as i have been increasingly aware of his ow little quirks.

    I will never view anything to do with my son as a 'bad thing ' ,we are a strong family unit and i would do anything for my kids. 

    Iam hoping that a diagnosis will infact help , as floating along as i do at the moment is heart wrenching stuff , my son does noy talk at all , he makes noises and screams , i find this very hard as at times i feel like i must be failing him in his needs , and maybe causing some of the frustration that causes him to lash out.

    I thank you for the kind words , any any advice you may have would be very dear to me Smile

    July X

  • There's nothing wrong with how you're feeling, and I'm not saying you shouldn't feel that way, but, try not to view any potential diagnosis as a 'bad thing', and above all else don't blame yourself, your partner, or anyone else.

    There are difficulties associated with any ASD, but people with ASDs generally have many positive traits, and often don't experience many of the difficulties that people not on the spectrum do.