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Not sure if I have referral

Justfour

Hi all. A few weeks ago I went to the GP to hopefully get a referral for my 11year old whom I suspect has an ASD. I went in with a list and she said she would pass it on and IF   The paediatrician got back to her she would phone me.

This morning I've had an appointment letter through to 'discuss' a letter from the hospital. It was computer generated so no details.

If anyone out there knows what this might mean, it will save me a lot of wondering etc. 

I assumed the pead would refer me to a autism specialist or the gp would phone to say there's-nothing to worry about. 

Any ideas would be gratefully received. Thanks x

Parents

  • I can relate totally to your frustration about this situation.  I have a 10 year old daughter and I was concerned about her over 3 years ago and was told by the GP that she was just precocious and the twitching  she experienced was just 'one of those quirks that some people have'.  He eventually agreed to refetheir to CAMHS but as they were psychiatrists for children with suicidal and self harming tendencies, mydaughter was told she was 'a bit shy and could work on her social skills'.  

    As a parent you know if there is something not quite 'right' and my advice is to be persistent it his process.  For some reason it seems to be difficult to get taken seriously, especially with a daughter.  The more I read the research about presentation ASD symptoms in girls vs boys, the more I understand why  it is so difficult to diagnose in girls.

    we eventually went private with a clinical psychologist and after spending well over £1000 in appointments and psychometric testing Aspergers was confirmed.  We simply cannot afford to keep paying for appointments to give support and as our local borough has NO services whatsoever, we need thE NHS diagnosis.  3 years after initially visiting the GP I have finally been able to organise an assessment for her through the NHS in our borough but I am a little concerned as it is not a specialist ASD unit but a general paeds one.  Hopefully they will be more knowledgable than the GP!

    Good luck with your daughters' diagnostic process and hopefully you will not have to go to the same trouble and expense as our family did.

Reply

  • I can relate totally to your frustration about this situation.  I have a 10 year old daughter and I was concerned about her over 3 years ago and was told by the GP that she was just precocious and the twitching  she experienced was just 'one of those quirks that some people have'.  He eventually agreed to refetheir to CAMHS but as they were psychiatrists for children with suicidal and self harming tendencies, mydaughter was told she was 'a bit shy and could work on her social skills'.  

    As a parent you know if there is something not quite 'right' and my advice is to be persistent it his process.  For some reason it seems to be difficult to get taken seriously, especially with a daughter.  The more I read the research about presentation ASD symptoms in girls vs boys, the more I understand why  it is so difficult to diagnose in girls.

    we eventually went private with a clinical psychologist and after spending well over £1000 in appointments and psychometric testing Aspergers was confirmed.  We simply cannot afford to keep paying for appointments to give support and as our local borough has NO services whatsoever, we need thE NHS diagnosis.  3 years after initially visiting the GP I have finally been able to organise an assessment for her through the NHS in our borough but I am a little concerned as it is not a specialist ASD unit but a general paeds one.  Hopefully they will be more knowledgable than the GP!

    Good luck with your daughters' diagnostic process and hopefully you will not have to go to the same trouble and expense as our family did.

Children
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