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Not sure if I have referral

Justfour

Hi all. A few weeks ago I went to the GP to hopefully get a referral for my 11year old whom I suspect has an ASD. I went in with a list and she said she would pass it on and IF   The paediatrician got back to her she would phone me.

This morning I've had an appointment letter through to 'discuss' a letter from the hospital. It was computer generated so no details.

If anyone out there knows what this might mean, it will save me a lot of wondering etc. 

I assumed the pead would refer me to a autism specialist or the gp would phone to say there's-nothing to worry about. 

Any ideas would be gratefully received. Thanks x

Parents

  • Hi Justfour

    Don't worry about the fact that school don't see the same things that you do. I think that is quite common - and is probably partly to do with teachers not really understanding the signs of ASD (and while they may only be subtle in school, they are probably there to a certain extent), and also because the children get through the day and appear to cope until they get home (my son was a different person once he was out of the school gate!)

    I should think the paediatrician will do an ADOS assessment with your daughter - part of this involves asking questions (e.g. what makes you happy?) and part of it is interactive with describing pictures, telling a story, using toys or objects for various things. My son wasn't very cooperative with the questioning and kept saying 'I don't know', so I was glad that he seemed happy to participate in the more interactive part. I thought he did quite well with it, but sometimes I think we are so close to the situation that we think the child is behaving quite 'normally', it's only when you take a step back and look at what they are saying and how they're saying it that you realise it's not actually 'normal'. 

    We actually went private before our NHS appointment came through and the psychiatrist gave us lots of forms to fill in and did an ADI assessment based on our answers. From this she said my son did not have ASD - this was based only on parents response and not on any discussion/interaction with my son - but she was scratching her head a bit because from everything she'd seen of my son there were definite ASD traits! So, I know you think that the answers you give on the form could give a better picture of your daughter - but it's quite likely that from talking to your daughter the paediatrician will actually pick up a lot more than you think. 

    Sharon

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  • Hi Justfour

    Don't worry about the fact that school don't see the same things that you do. I think that is quite common - and is probably partly to do with teachers not really understanding the signs of ASD (and while they may only be subtle in school, they are probably there to a certain extent), and also because the children get through the day and appear to cope until they get home (my son was a different person once he was out of the school gate!)

    I should think the paediatrician will do an ADOS assessment with your daughter - part of this involves asking questions (e.g. what makes you happy?) and part of it is interactive with describing pictures, telling a story, using toys or objects for various things. My son wasn't very cooperative with the questioning and kept saying 'I don't know', so I was glad that he seemed happy to participate in the more interactive part. I thought he did quite well with it, but sometimes I think we are so close to the situation that we think the child is behaving quite 'normally', it's only when you take a step back and look at what they are saying and how they're saying it that you realise it's not actually 'normal'. 

    We actually went private before our NHS appointment came through and the psychiatrist gave us lots of forms to fill in and did an ADI assessment based on our answers. From this she said my son did not have ASD - this was based only on parents response and not on any discussion/interaction with my son - but she was scratching her head a bit because from everything she'd seen of my son there were definite ASD traits! So, I know you think that the answers you give on the form could give a better picture of your daughter - but it's quite likely that from talking to your daughter the paediatrician will actually pick up a lot more than you think. 

    Sharon

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