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Got diagnosis of for my son today

dawnyp

After 2 and a half years of assesments with cahms I finally got a diagnosis of ASD for my 9 year old son this afternoon and I think I'm in shock, I've been home just over an hour and I keep crying. I wasnt expecting a diagnosis today, I thought it was just a follow up after an ADI. He didnt meet the criteria on the ADOS last year so I thought that meant he definitley wasnt on the spectrum. PDD NOS was disscussed and I thought he might possibly get a diagnosis of that at some point. But the ADI and something called a DSM 1V have shown him as being on the spectrum. Apparently he is a very complex case. Is it normal to be so shocked/upset? Its not like I didnt know "something" was wrong.

Parents

  • Hi, did they tell you that you were going to get a diagnosis on a certain day? I never got that, I thought I was just going in for feed back after an interview with speech therapist so I hadnt prepared for what they told me. I have calmed down now and realise that nothing has changed, he is still my little monster (as I call him) with his funny ways but now he will get more support and understanding.  Your little one is very young so hopefully she will get all the help and support from day one at nursery/ school etc. From what CAHMS and school have told me, we as parents will get extra help and support too. I dont know if you feel the same but half of me wanted a diagnosis and the other half didnt, so very mixed and confusing feelings. Good luck and let me know how you get on xx

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  • Hi, did they tell you that you were going to get a diagnosis on a certain day? I never got that, I thought I was just going in for feed back after an interview with speech therapist so I hadnt prepared for what they told me. I have calmed down now and realise that nothing has changed, he is still my little monster (as I call him) with his funny ways but now he will get more support and understanding.  Your little one is very young so hopefully she will get all the help and support from day one at nursery/ school etc. From what CAHMS and school have told me, we as parents will get extra help and support too. I dont know if you feel the same but half of me wanted a diagnosis and the other half didnt, so very mixed and confusing feelings. Good luck and let me know how you get on xx

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