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Got diagnosis of for my son today

dawnyp

After 2 and a half years of assesments with cahms I finally got a diagnosis of ASD for my 9 year old son this afternoon and I think I'm in shock, I've been home just over an hour and I keep crying. I wasnt expecting a diagnosis today, I thought it was just a follow up after an ADI. He didnt meet the criteria on the ADOS last year so I thought that meant he definitley wasnt on the spectrum. PDD NOS was disscussed and I thought he might possibly get a diagnosis of that at some point. But the ADI and something called a DSM 1V have shown him as being on the spectrum. Apparently he is a very complex case. Is it normal to be so shocked/upset? Its not like I didnt know "something" was wrong.

Parents

  • Hiya, I am awaiting diagnosis (this week) for my 3 year old daughter. I am the same, when the doctor said yes, she is not as she should be, she has problems it broke my heart (even though I knew deep down).

    I cried for two days solid, it broke my heart. And now back to square one, the scary diagnosis is looming. I need to kick myself up the bottom and listen to my head when it says its a good thing its been picked up so young. 

    I hope you start to feel better soon :) x

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  • Hiya, I am awaiting diagnosis (this week) for my 3 year old daughter. I am the same, when the doctor said yes, she is not as she should be, she has problems it broke my heart (even though I knew deep down).

    I cried for two days solid, it broke my heart. And now back to square one, the scary diagnosis is looming. I need to kick myself up the bottom and listen to my head when it says its a good thing its been picked up so young. 

    I hope you start to feel better soon :) x

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